Table 2.

Selective illustrative quotations about how a transplant-specific immunization app might help address immunization barriers in the pretransplant period

Theme	Illustrative Quotation
Increase factual knowledge	I don’t know a lot of the scientific words of what the doctor says—if the app could explain the vaccine, it would be amazing. [parent] It would be great to have information about what the vaccine is, what it protects against, how often it needs to be given, and why its extra important for a soon-to-be immunocompromised child. [parent] I’d like a place to verify vaccine information; I don’t want to mess it up. [primary care provider] If there was a tool where I could enter the child’s age, the vaccines they had received, and if needed anticipated transplant date and it would give me their individualized accelerated schedule that would be terrifically efficient. [infectious diseases physician] Because most people haven’t seen vaccine-preventable infections like measles or mumps, the diseases aren’t as scary as they should be. Providing a brief blurb about what the disease can look like would make families more inclined to follow through on a vaccine. [transplant nurse coordinator] Having education material about each vaccine would be great—a family could click on it and get a recall of why that vaccine’s important. [hepatologist]
Enhance communication and coordination	Being able to get everyone on the same page to get questions answered would be great. [parent] An app sounds wonderful—if there could be communication between me, my primary care provider, and the transplant team. Everyone could be on the same track. [parent] It’s exhausting trying to get a hold of someone when you have a question, and you can’t go forward until you reach them. The tool would improve communication a hundredfold. [parent] Efficient communication to everybody sounds pretty great. [primary care provider] Families live on their phone, that is the way to communicate with them. [hepatologist]
Centralize vaccine records	I have my child’s vaccines on a card, but if I lose that card or forget to write a new vaccine on the card, I don’t know where that information would be. [parent] When you’re dealing with the stress of a super sick kid you can’t remember every detail like when vaccines were given. It would be great just to open up the app. [parent] A health tool could be a repository for immunizations, particularly for those children from out of state or those children with gaps in their records. [primary care provider] Being able to see in real time the vaccine record would be great. [transplant nurse coordinator] Centralization of records would be great because right now they’re in multiple places. [hepatologist]
Help track when vaccines are due	Reminders would be so big—if all of us transplant families could get reminders, we would be able to get immunizations done on time. [parent] If the app could alert not just me but also the doctor’s office that my child had a shot due that would be really helpful. [parent] A reminder on your phone seems simple buts it’s a huge deal for a transplant patient and their family. [parent] Anything that makes it easier for people to remember when a vaccine is due would help us improve immunization rates. [hepatologist]