Table 5.

Advantages and disadvantages of the KLIK PROM portal, mentioned by patients (N = 31) and parents (N = 130) in the open questions of the evaluation questionnaire

	Examples
Advantages KLIK PROM portal
Easy to use	‘Simple and clear’ ‘It is easy that you can complete questionnaires online at home’
Clinician is better prepared	‘The clinician can see my questions before the appointment at the outpatient clinic’ ‘The clinician is already aware of my child's health situation and can immediately respond to it’
Patient and parents are better prepared	‘It is valuable that you can ask the clinician questions in advance so that you do not forget them’ ‘Subjects are discussed which you normally do not bring up yourself’
Insight into functioning (of my child)	‘KLIK provides insight into how I am doing’ ‘Provides the opportunity to compare the health situation of my child now with the situation just after diagnosis’
Disadvantages KLIK PROM portal
Not easy to use	‘I keep forgetting my password’ ‘Annoying that I get multiple reminders’
Irrelevant content of PROMs	‘Not all questions apply to our situation’ ‘It is boring to complete the same questionnaires every time’
Takes time	‘Completing the questionnaires takes sometimes more time than I hope’ ‘It is a lot of work to complete the questionnaires’

All quotes were translated into English