Table 2.
Survivorship care practices at participating COG institutions
| Long-term follow-up service | N | % | |
|---|---|---|---|
| Clinic provides survivors with a copy of their cancer treatment summary | Yes | 133 | 88.1 |
| No | 18 | 11.9 | |
| Models of care used to follow late effects (for survivors < 18) | In specialized LE program by designated providers in pediatric institution | 108 | 74.5 |
| In regular pediatric oncology clinic by health care professionals staffing clinic | 28 | 19.3 | |
| In regular pediatric oncology clinic by treating oncologist and family practice | 7 | 4.8 | |
| No specialized LE follow-up provided | 2 | 1.4 | |
| Models of care used to manage risk-based surveillance (for survivors < 18) | Designated LE clinic team refers to sub-specialists | 88 | 59.1 |
| Treating oncologist manages LE care and refers to sub-specialists | 42 | 28.2 | |
| Designated LE clinic staffed by LE team and sub-specialists together | 19 | 12.7 | |
| Timing of risk-based surveillance (< 18 only) | Necessary tests/scans most often arranged for same day of LE visit | 108 | 72.5 |
| Necessary surveillance scans/tests most often done on another day/time from LE clinic visit | 41 | 27.5 | |
| Clinic provides yearly screening for adverse educational and/or vocational progress | Yes | 119 | 84.4 |
| No | 14 | 9.9 | |
| Only once—no yearly follow-up | 6 | 4.3 | |
| N/A | 2 | 1.4 | |
| Clinic provides yearly screening for relationship difficulties | Yes | 107 | 75.9 |
| No | 25 | 17.7 | |
| Only once—no yearly follow-up | 7 | 5.0 | |
| N/A | 2 | 1.4 | |
| Clinic provides yearly screening for distress, anxiety, and depression | Yes | 120 | 85.1 |
| No | 12 | 8.5 | |
| Only once—no yearly follow-up | 7 | 5.0 | |
| N/A | 2 | 1.4 | |
| Clinic provides yearly screening for risky health behaviors | Yes | 116 | 83.4 |
| No | 14 | 10.1 | |
| Only once—no yearly follow-up | 6 | 4.3 | |
| N/A | 3 | 2.2 | |
| Method(s) of psychosocial screening used in long-term follow-up clinic (mark all that apply) | Standardized patient-reported outcome assessment tools | 32 | 25.2 |
| Review of systems or needs checklist | 59 | 46.5 | |
| Interview with oncology provider | 93 | 73.2 | |
| Interview with psychologist/neuropsychologist | 46 | 36.2 | |
| Interview with social work/professional counselor/educational liaison | 80 | 63.0 | |
| Interview with nurse | 3 | 2.4 |