Table 4.
Comparison of 121 institutions that provided responses from 2007 to 2017 survey
| Long-term follow-up service | 2007 N | % | 2017 N | % | p-value* | |
|---|---|---|---|---|---|---|
| Late effects care for childhood cancer survivors provided at institution | Yes | 111 | 91.7 | 117 | 96.7 | |
| No | 10 | 8.3 | 4 | 3.3 | < .0001 | |
| Does your program provide clinical consultations to survivors not treated at your institution? | Yes | 96 | 86.5 | 108 | 92.3 | 0.004 |
| No | 15 | 9 | 7.7 | |||
| Can patients self-refer for late effects services at your institution? | Yes | 89 | 80.2 | 98 | 82.4 | < .0001 |
| No | 22 | 19.8 | 21 | 17.6 | ||
| Eligibility criteria for entry into LE services | at least 2 years off treatment | 44 | 40.4 | 65 | 55.1 | |
| at least 3 years off treatment | 22 | 20.2 | 28 | 23.7 | ||
| at least 5 years off treatment | 8 | 7.3 | 5 | 4.2 | ||
| at least 5 years from diagnosis | 15 | 13.8 | 10 | 8.5 | ||
| Other/no defined criteria | 20 | 18.3 | 10 | 8.5 | ||
| Average number of new pediatric oncology patients treated annually | Less than 30 new oncology patients/year | 16 | 15.0 | 14 | 11.6 | |
| 31–60 new oncology patients/year | 31 | 29.0 | 30 | 25.0 | ||
| 61–90 new oncology patients/year | 26 | 24.3 | 29 | 24.2 | ||
| 91–120 new oncology patients/year | 9 | 8.4 | 17 | 14.2 | ||
| 121–150 new oncology patients/year | 10 | 9.3 | 6 | 5.0 | ||
| Greater than 150 new oncology patients/year | 15 | 14.0 | 24 | 20.0 | ||
| Number of survivor visits in 2016 | Less than 50 visits | 4 | 3.8 | 12 | 10.3 | |
| 50–100 visits | 29 | 27.1 | 17 | 14.7 | ||
| 101–300 visits | 44 | 41.1 | 33 | 28.5 | ||
| 301–500 visits | 12 | 11.2 | 18 | 15.5 | ||
| 501–800 visits | 4 | 3.7 | 10 | 8.6 | ||
| Greater than 801 visits | 3 | 2.8 | 8 | 6.9 | ||
| Data not available | 11 | 10.3 | 18 | 15.5 | ||
| Frequency of childhood cancer survivor appointments offered | one day/week | 34 | 30.9 | 29 | 24.4 | |
| 2–3 days/week | 25 | 22.7 | 37 | 31.1 | ||
| 4–5 days/week | 13 | 11.8 | 19 | 16.0 | ||
| one day per month | 9 | 8.2 | 10 | 8.4 | ||
| two days per month | 19 | 17.3 | 18 | 15.1 | ||
| Other | 10 | 9.1 | 6 | 5.0 | ||
| Do all/almost all survivors receive a copy of their cancer treatment summary? | Yes | 72 | 67.3 | 106 | 88.3 | |
| No | 35 | 32.7 | 14 | 11.7 | < .0001 | |
| 2 most problematic barriers in caring for pediatric cancer survivors | Lack of dedicated time for late effects program development | 55 | 51.9 | 62 | 58.5 | |
| Not enough funding for support of program | 38 | 35.9 | 48 | 45.3 | ||
| Survivor knowledge deficit about the importance of maintaining cancer-related follow-up | 38 | 35.9 | 16 | 15.1 | ||
| Survivor lack of health care insurance or insurance limitations | 23 | 21.7 | 28 | 26.4 | ||
| Lack of survivor desire to be followed by the LE team | 14 | 13.2 | 12 | 11.3 | ||
| Lack of perceived need or support for LE services/program by other oncologists | 12 | 11.3 | 18 | 17.0 | ||
| There are no barriers in my institution | 7 | 6.6 | 5 | 4.7 | ||
| Other | 9 | 8.5 | 13 | 12.3 |
*McNemar test for dichotomous comparison of changes in answers from 2007 to 2017