Table 1.
Sample characteristics.
| Characteristic | Caregiver (n = 18) | Care Recipient (n = 18) |
|---|---|---|
| Age, y, mean (range) | 49.0 (30–61) | 14.4 (6–36) |
| Sex, n (%) | ||
| Female | 18 (100.0) | 8 (44.4) |
| Male | 0 (0.0) | 10 (55.6) |
| Race, n (%) | ||
| White | 18 (100.0) | 18 (100.0) |
| Ethnicity, n (%) | ||
| Not Hispanic or Latino | 18 (100.0) | 18 (100.0) |
| Relationship to care recipient, n (%) | ||
| Mother | 18 (100.0) | |
| Caregiver highest level of education, n (%) | ||
| Graduate degree | 8 (44.4) | |
| College degree | 7 (38.9) | |
| Some college/associate’s degree | 3 (16.7) | |
| Care recipient highest level of education, n (%) | ||
| High school graduate | 5 (27.8) | |
| High school | 2 (11.1) | |
| Elementary school | 9 (50.0) | |
| Pre/kindergarten | 2 (11.1) | |
| Caregiver-reported severity of daytime sleepiness, n (%)a | ||
| Moderately troublesome | 9 (50.0) | |
| Very troublesome | 7 (38.9) | |
| Extremely troublesome | 2 (11.1) | |
| ESS-CHAD score, mean (range)b | 12.7 (9–21) |
aBased on caregiver report at screening. bBased on completion in the cognitive interview (standard deviation = 3.50, median score = 12.0); the total possible ESS-CHAD score ranges from 0 to 24, with higher scores representing greater daytime sleepiness as perceived by parents/caregivers. ESS-CHAD = Epworth Sleepiness Scale for Children and Adolescents.