Table 4.

Major themes extracted from the answers to the open-ended question

Theme	Subtheme examples of quotes
Poor administration of coagulation medicines	Low availability of coagulation medicines	1	‘There are no needed medicines in the primary hospital’.
		2	‘There is a lack of medicines’.
		3	‘The primary hospital should take responsibility to supply the medicines’.
		4	‘It is difficult to buy needed medicines’.
		5	‘‘This disease does not need hospital treatment; but medicines are expensive and difficult to buy. This problem needs to be addressed as this disease damages multiple organs and long-term use of medicines is required’.
		6	‘I am from the countryside and I can only obtain the medicines from the big city’.
		7	‘I think supply of medications is the most important thing to be solved’.
	Irregular use of medications	8	‘To ensure the timely use of drugs to prevent haemophilia, reduce the rate of disability, improve the quality of life’.
Adverse impacts of haemophilia on work and life	Low work ability	9	‘We can’t work and need a better healthcare system’. ‘We have lost the ability to work and have no source of income’.
		10
		11	‘I am incapable of working’.
	Incomplete family life	12	‘We lost the ability to survive, work and get married’.