Table 2.
Impact of caregiving on WPAI and professional career
| Caregiver outcomes (n = 22) | N (%) | Mean (SD) |
|---|---|---|
| WPAI | ||
| Currently working for pay, n (%) | 16 (73) | – |
| Absenteeism, mean (SD) | 16 (73) | 26.9 (40.1) |
| Presenteeism, mean (SD) | 13 (59) | 40.0 (24.2) |
| Overall work productivity impairment, mean (SD) | 13 (59) | 45.6 (25.6) |
| Daily activity impairment, mean (SD) | 22 (100) | 48.6 (27.7) |
| Employment status, n (%) | – | |
| Full-time employed | 8 (36) | |
| Part-time employed | 4 (18) | |
| Self-employed | 4 (18) | |
| Homemaker | 2 (9) | |
| Other | 4 (18) | |
| Impact on work, n (%) | ||
| Yes, I have missed workdays | 8 (36) | – |
| Workdays missed, mean (SD) | 8 (36) | 12.9 (19.30) |
| No days missed, but productivity issues | 5 (23) | – |
| No impact | 3 (14) | – |
| Not applicable | 6 (27) | – |
| Impact on stopping work, n (%) | ||
| Yes, I have missed work years | 8 (36) | – |
| Work years missed, mean (SD) | 8 (36) | 2.8 (1.5) |
| No years missed | 12 (55) | – |
| Not applicable | 2 (9) | – |
| Impact on career, n (%) | – | |
| Impact of PFIC on career building | 11 (50) | |
| Alternate career choice | 5/11 (46) | |
| Prevented career progression | 8/11 (73) | |
| Prevented from working more hours | 8/11 (73) | |
| Other | 6/11 (55) |
PFIC progressive familial intrahepatic cholestasis, SD standard deviation