. Author manuscript; available in PMC: 2022 Feb 3.

Published in final edited form as: Disabil Health J. 2021 Aug 28;15(1):101198. doi: 10.1016/j.dhjo.2021.101198

Table 2.

Summary of medicaid HCBS waivers targeting children with developmental disabilities.

Number of waivers (n = 33)
1 waiver	AK, AR, KA, LA, MA, MD, MI, MT, ND, NH, PA, SC, UT, WA
2 or more waivers	CO, CT, ID, IL, MO, NY, OR, TN, WI
Mean years since first waiver enacted^a (SD)	13.7 (8.7)
Mean estimated cost^b (SD)	$30,809.8 (48,545.6)
Mean cost limit^c (SD)	$149,375.6 (112,361.5)
Mean maximum number of children served^d (SD)	1495.3 (1961.4)

Note. Estimated Cost: this is listed in the appendix of every waiver and demonstrates the cost of each year of enacting the waiver per individual. Cost Limit: maximum amount of money that can be spent per individual on the waiver. Maximum Children Served: maximum number of participants who can be served by the waiver each year.

Abbreviations. AK, Alaska; AR, Arkansas; KA, Kansas; LA, Louisiana; MA, Massachusetts; MD, Maryland; MI, Michigan; MT, Montana; ND, North Dakota; NH, New Hampshire; PA, Pennsylvania; SC, South Carolina; UT, Utah; WA, Washington; CO, Colorado; CT, Connecticut; ID, Idaho; IL, Illinois; MO, Missouri; NY, New York; OR, Oregon; TN, Tennessee; WI, Wisconsin; HCBS, home and community-based services; SD, standard deviation.

Data sources: Waiver information was gathered systematically from https://www.medicaid.gov/medicaid, as well as individual state Medicaid websites. In some cases, waivers were collected through email from a state CMS employee, or from Dr. Dianna Velott. Data was collected directly from waiver applications and waiver renewal documents.