Table 1.

Demographics for all Observations.

	Unaffected	ICL/P	Overall
Number of Unique Participants	144	134	278
Number of Observations	208	184	392
First Observation	144	134	278
Second Observation	55	42	97
Third Observation	9	8	17
Age at Observation
Mean (SD)	14.9 (4.32)	15.6 (5.07)	15.2 (4.70)
Median [Min, Max]	15.1 [7.08, 26.5]	15.8 [7.00, 27.3]	15.4 [7.00, 27.3]
Age Band at Observation
Number 7 – 11 years old	45	41	86
Number 12 – 14 years old	54	40	94
Number 15 – 18 years old	70	57	127
Number 19 – 22 years old	33	29	62
Number 23 – 27 years old	6	17	23
Sex
Females	105 (50.5%)	67 (36.4%)	172 (43.9%)
Males	103 (49.5%)	117 (63.6%)	220 (56.1%)
Race
White/Caucasian	197 (94.7%)	147 (79.9%)	344 (87.8%)
Asian American	2 (1%)	19 (10.3%)	21 (5.4%)
Black/African American	1 (0.5%)	2 (1.1%)	3 (0.8%)
American Indian/Alaska Native	0 (0%)	3 (1.6%)	3 (0.8%)
Native Hawaiian/Pacific Islander	0 (0%)	1 (0.5%)	1 (0.3%)
Hispanic/Latino(a)	3 (1.4%)	5 (2.7%)	8 (2%)
Multiracial	3 (1.4%)	6 (3.3%)	9 (2.3%)
Not Provided	2 (1%)	1 (0.5%)	3 (0.8%)
SES
High	5 (2.4%)	0 (0%)	5 (1.3%)
Upper-Middle	136 (65.4%)	78 (42.4%)	214 (54.6%)
Middle	62 (29.8%)	93 (50.5%)	155 (39.5%)
Lower-Middle	5 (2.4%)	13 (7.1%)	18 (4.6%)
Low	0 (0%)	0 (0%)	0 (0%)

Note. Demographics presented are for each observation; participants who had return visits are counted more than once. SES = Socioeconomic Status.