Table 1.
Descriptive Summary of Sample Demographic and Clinical Characteristics (N = 128).
| Characteristic | Mean (SD) |
|---|---|
| Age | 10.9 (3.0) |
| N (%) | |
| Child sex | |
| Male | 60 (46.9%) |
| Female | 68 (53.1%) |
| Race (N = 126) | |
| White | 107 (84.9%) |
| Black or African American | 4 (3.2%) |
| Asian | 2 (1.6%) |
| American Indian or Alaska Native | 2 (1.6%) |
| Other | 11 (8.7%) |
| Ethnicity (N = 126) | |
| Hispanic or Latino | 15 (11.9%) |
| Not Hispanic or Latino | 111 (88.1%) |
| Primary language | |
| English | 124 (96.9%) |
| Spanish | 4 (3.1%) |
| Location of permanent home | |
| Northeast | 17 (13.3%) |
| Southeast | 29 (22.7%) |
| Midwest | 66 (51.6%) |
| Southwest | 11 (8.6%) |
| West | 5 (3.9%) |
| Current family income per year | |
| Under $25,000 | 50 (39.1%) |
| $25,001–$50,000 | 31 (24.2%) |
| $50,001–$75,000 | 16 (12.5%) |
| $75,001–$100,000 | 15 (11.7%) |
| $100,001 or more | 16 (12.5%) |
| Malignancy type | |
| Hematologic | 67 (52.3%) |
| Solid tumor | 34 (26.6%) |
| CNS tumor | 27 (21.1%) |
| History of: | |
| Cancer relapse or recurrence | 88 (68.8%) |
| Secondary cancer (N = 127) | 3 (2.4%) |
| Surgery to remove a tumor | 53 (41.4%) |
| Chemotherapy treatments | 121 (94.5%) |
| Radiation therapy | 85 (66.4%) |
| Bone marrow transplant | 22 (17.3%) |
| Phase 1 clinical research involvement | |
| Yes | 22 (17.2%) |
| No | 78 (60.9%) |
| Unsure | 28 (21.9%) |
| Been told cancer is terminal | 13 (10.2%) |
| Presence of active DNR order | 2 (1.6%) |
| Currently enrolled in hospice | |
| Yes | 2 (1.6%) |
| No | 125 (97.7%) |
| Unknown | 1 (0.8%) |
| Currently enrolled in palliative care | |
| Yes | 7 (5.5%) |
| No | 115 (89.8%) |
| Unknown | 6 (4.7%) |
| Median (IQR) | |
| Years since diagnosis (N = 127) | 3.9 (1.8, 6.0) |
Note. DNR: Do not resuscitate.