Table 1.
Participant Characteristics (N = 23 couples)
| Variables | Spousal caregivers | Persons with YOD |
|---|---|---|
| Sex, n (%) | ||
| Female | 13 (57) | 11 (48) |
| Male | 10 (43) | 12 (52) |
| Race/ethnicity, n (%) | ||
| White, not Hispanic or Latino | 21 (91) | 20 (87) |
| White, Hispanic or Latino | 0 (0) | 1 (4) |
| Asian, not Hispanic or Latino | 1 (4) | 0 (0) |
| More than one race, not Hispanic or Latino | 0 (0) | 1 (4) |
| Chose not to respond | 1 (4) | 1 (4) |
| Education, n (%) | ||
| Completed high school or equivalent (12 years) | 1 (4) | 0 (0) |
| Some college/associates degree (<16 years) | 2 (9) | 4 (17) |
| Completed 4 years of college (16 years) | 8 (35) | 10 (43) |
| Graduate/professional degree (>16 years) | 12 (52) | 9 (39) |
| Relationship length, years | ||
| Mean (SD) | — | 33.70 (9.65) |
| Range | — | 13–48 |
| Median | — | 33 |
| Age at interview, years | ||
| Mean (SD) | 60.52 (5.41) | 61.30 (4.65) |
| Range | 49–69 | 54–70 |
| Median | 60 | 62 |
| Age at symptom onset (n = 19), years | ||
| Mean (SD) | 56 (4.04) | |
| Range | 49–63 | |
| Median | 56 | |
| Age diagnosed, years | ||
| Mean (SD) | 57.87 (5.33) | |
| Range | 45–67 | |
| Median | 59 | |
| Years since diagnosis at the time of interview, years | ||
| Mean (SD) | 3.11 (3.85) | |
| Range | 0.17–17 | |
| Median | 2 | |
| Diagnosis, n (%) | ||
| Atypical AD | 8 (35) | |
| Typical AD | 4 (17) | |
| Language variant FTLD | 2 (9) | |
| Behavioral variant FTLD | 4 (17) | |
| Atypical FTLD | 1 (4) | |
| Prodromal FTLD | 1 (4) | |
| PSP | 2 (9) | |
| Unspecified early-onset dementia | 1 (4) | |
| Standard Global Clinical Dementia Rating Scale (n = 17) | ||
| Mean (SD) | 0.59 (0.44) | |
| Range | 0–2 | |
| Median | 0.5 |
Note: AD = Alzheimer’s disease; FTLD = frontotemporal lobar degeneration; PSP = progressive supranuclear palsy; YOD = young-onset dementia.