Table 1.

Main current patient-reported outcomes measures developed for adults with chronic kidney disease (CKD).

STUDY Ref.	Assessments	Item Number	Burden Rating Scale	Population/Validation	Recall
CKD-SBI [14]	Prevalence, severity and frequency of symptoms	33	11 point Likert scale	CKD/ESRD	4 weeks
CHEQ [15]	Health perception, physical, social, physical role, emotional role, pain, mental compound, vitality, cognitive and sexual disorder, sleep, job, recreation, travel, finances, general QoL, diet, body image, dialysis access, symptoms	80	2–7 point Likert scale	ESRD/CKD	4 weeks/3 months/in general
DSI [16]	Physical symptom burden, symptom severity	30	5 point Likert scale	ESRD/CKD	1 week
KDQOL-SF [17]	Symptoms, burden of kidney disease, work situation, cognitive impairement, social aspects, sexual disorder, sleep, social support, patient satisfaction, physical functioning, role physical, pain, general health perceptions, emotional well-being, emotional state, social function, energy	82	2–10 point Likert scale	ESRD/CKD	4 weeks
KDQOL-36 [18]	Includes the SF-12 as generic core plus the burden, symptoms/problems, and effects of kidney disease scales from the KDQOL-SF™v1.3.	36	5 point Likert scale	ESRD/CKD	4 weeks/in general

CKD: chronic kidney disease; CKD-SBI: Chronic Kidney Disease-Symptom Burden Index; CHEQ: CHOICE Health Experience Questionnaire; CKD QOL: Chronic Kidney Disease Quality of Life; DSI: Dialysis Symptom Index: KDQOL-SF: Kidney Disease Quality of Life—Short Form: KDQOL-36: Kidney Disease Quality of Life-36. References [14,15,16,17,18] are included.