Table 3.
Responses to 10-item decision conflict scale and decision participation questions
| Overall (n=101) n(%) | Pre-SDM mandate (n=45) n(%) | Post-SDM mandate (n=56) n(%) | P-value | |
|---|---|---|---|---|
| If you were able to choose how to live the rest of your life, what number on the scale from 1 to 10 would represent where you would want to be (1 represents living as long as possible, even if symptoms from heart failure or other illnesses worsen over time and 10 represents dying quickly from any cause– for example, dying in your sleep). | ||||
| Mean (SD) | 4.61 (3.52) | 4.35 (3.11) | 4.82 (3.82) | 0.5108 |
| Did you know which options were available to you? | ||||
| Yes | 76 (75.25) | 34 (75.56) | 42 (75.00) | 0.0706 |
| Unsure | 14 (13.86) | 9 (20.00) | 5 (8.93) | |
| No | 11 (10.89) | 2 (4.44) | 9 (16.07) | |
| Did you know the benefits of each option? | ||||
| Yes | 90 (89.11) | 37 (82.22) | 53 (94.64) | 0.0456 |
| Unsure | 4 (3.96) | 4 (8.89) | 0 (0) | |
| No | 7 (6.93) | 4 (8.89) | 3 (5.36) | |
| Did you know the risks and side effects of each option? | ||||
| Yes | 81 (80.20) | 32 (71.11) | 49 (87.50) | 0.0554 |
| Unsure | 7 (6.93) | 6 (13.33) | 1 (1.79) | |
| No | 13 (12.87) | 7 (15.56) | 6 (10.71) | |
| Were you clear about which benefits mattered most to you? | ||||
| Yes | 90 (89.11) | 39 (86.67) | 51 (91.07) | 0.4821 |
| Unsure | 4 (3.96) | 3 (6.67) | 1 (1.79) | |
| No | 7 (6.93) | 3 (6.67) | 4 (7.14) | |
| Were you clear about which risks and side effects mattered most to you? | ||||
| Yes | 80 (79.21) | 35 (77.78) | 45 (80.36) | 0.3204 |
| Unsure | 9 (8.91) | 6 (13.33) | 3 (5.36) | |
| No | 12 (11.88) | 4 (8.89) | 8 (14.29) | |
| Did you have enough support from others to make the choice? | ||||
| Yes | 88 (87.13) | 38 (84.44) | 50 (89.29) | 0.7315 |
| Unsure | 4 (3.96) | 2 (4.44) | 2 (3.57) | |
| No | 9 (8.91) | 5 (11.11) | 4 (7.14) | |
| Did you make the choice without pressure from others? | ||||
| Yes | 87 (86.14) | 40 (88.89) | 47 (83.93) | 0.7706 |
| Unsure | 2 (1.98) | 1 (2.22) | 1 (1.79) | |
| No | 12 (11.88) | 4 (8.89) | 8 (14.29) | |
| Did you have enough advice to make the choice? | ||||
| Yes | 96 (95.05 ) | 43 (95.56) | 53 (94.64) | 0.0777 |
| Unsure | 2 (1.98) | 2 (4.44) | 0 (0) | |
| No | 3 (2.97) | 0 (0) | 3 (5.36) | |
| Were you clear about the best choice for you? | ||||
| Yes | 94 (93.07) | 41 (91.11) | 53 (94.64) | 0.4911 |
| Unsure | 4 (3.96) | 3 (6.67) | 1 (1.79) | |
| No | 3 (2.97) | 1 (2.22) | 2 (3.57) | |
| Did you feel sure about what to choose? | ||||
| Yes | 95 (94.06) | 42 (93.33) | 53 (94.64) | 0.2866 |
| Unsure | 2 (1.98) | 2 (4.44) | 0 (0) | |
| No | 4 (3.96) | 3 (2.22) | 1 (5.36) | |
| Composite Decision Conflict Score | ||||
| Mean (SD) | 9.16 (13.82) | 11.89 (16.25) | 6.96 (11.19) | 0.0877 |
| How much do you feel that you and your doctor shared in the decision to have an ICD implanted? | ||||
| The final decision was entirely mine | 8 (7.92) | 3 (6.67) | 5 (8.93) | 0.7010 |
| Mostly my decision, with some input from the doctor | 22 (21.78) | 11 (24.44) | 11 (19.64) | |
| My doctor and I jointly made the final decision | 48 (47.52) | 23 (51.11) | 25 (44.64) | |
| Mostly my doctor’s decision, with some input from me | 16 (15.84) | 6 (13.33) | 10 (17.86) | |
| The final decision was made entirely by my doctor | 3 (2.97) | 0 (0) | 3 (5.36) | |
| I don’t remember | 4 (3.96) | 2 (4.44) | 2 (3.57) | |
| How much did you and your doctor talk about the reasons to get an ICD? | ||||
| A lot | 75 (74.26) | 29 (64.44) | 46 (82.14) | 0.1025 |
| A little bit | 22 (21.78) | 14 (31.11) | 8 (14.29) | |
| Not at all | 0 (0) | 0 (0) | 0 (0) | |
| I don’t remember | 4 (3.96) | 2 (4.44) | 2 (3.57) | |
| How much did you and your doctor talk about the reasons not to get an ICD? | ||||
| A lot | 25 (24.75) | 13 (28.89) | 12 (21.43) | 0.6443 |
| A little bit | 29 (28.71) | 11 (24.44) | 18 (32.14) | |
| Not at all | 32 (31.68) | 13 (28.89) | 19 (33.93) | |
| I don’t remember | 15 (14.85) | 8 (17.78) | 7 (12.50) | |
| Did any of your doctors ask you if you wanted an ICD? | ||||
| Yes | 69 (68.32) | 31 (68.89) | 38 (67.86) | 0.9118 |
| No | 32 (31.68) | 14 (31.11) | 18 (32.14) |