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. 2022 Feb 14;17:48. doi: 10.1186/s13023-022-02189-w

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© The Author(s) 2022

Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.

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Fig. 3 — Flow chart of data elements in the modified Delphi study. 164 data elements were discussed leading to inclusion of 99 after two rounds of questionnaires and two consensus meetings. Two decisions are visualized, (1) inclusion/exclusion and (2) minimal/core/optional. White corresponds to unconsented or excluded data elements, or data elements that are included but still need to be allocated to the minimal/core/optional set. Blue corresponds to the minimal set. Yellow corresponds to the core set. Coral red corresponds to the optional set