Table 1.

Practice definitions

Practice Definition	Inclusion Criteria	Ages at visit included	Patients Eligible (No.)	Visits Eligible (No.)
Dietitian Assessment
Patients documented as seen by a dietitian at or subsequent visit to inadequate weight gain	At least 1 inadequate weight gain visit	0–24 months	216	808
Calorie Intake Assessment
Calorie intake at visit subsequent to inadequate weight gain should be greater than minimum age-expected calories in formula-fed infants.	• Exclusively formula fed • Available calorie count at visit subsequent to inadequate weight gain	0–12 months	110	145
Calorie Density Increase
Formula calorie density should be reported as maintains or greater than at least 24 kcal/30 mL in subsequent visit to inadequate weight gain.	Formula calorie density in kcal/30 mL reported in CFFPR in visit subsequent to inadequate weight gain	0–24 months	101	161
PERT Dose Increase
PERT dose increases to greater than 300 units lipase/kg body weight compared to prior enzyme dose in subsequent visit to inadequate weight gain.	• Pancreatic insufficient (PI) as defined by fecal elastase (FE) <200 ug/g or 2 CFTR variants associated with pancreatic insufficiency • PERT dose recorded at visit subsequent to inadequate weight gain	0–12 months	152	270
Follow up clinic visit timing
Subsequent visit to inadequate weight gain seen sooner than routine follow up for agea:	At least 1 inadequate weight gain visit	0–24 months	216b	808
0–6 months old  <3.5 weeks (26 days)			142	216
6–12 months old  < 6 weeks (43 days)			100	133
12–24 months old  < 12 weeks (85 days)			203	459

^aCurrent recommendations for routine follow-up: monthly for infants < 6 months of age; every 2 months for infants 6–12 months of age; every 3 months for children 12–24 months of age

^bPatients eligible at more than one age group for follow up