Table 1.
Demographic and clinical characteristics of study cohort.
| All (n = 287) | Australia (n = 67) | Germany (n = 78) | Spain (n = 119) | The Netherlands (n = 23) | |
|---|---|---|---|---|---|
| Survey completion (Days since 100 cases) | 109.26 ± 48.57 | 52.06 ± 15.38 | 138.72 ± 49.51 | 109.40 ± 19.43 | 175.30 ± 41.79 |
| Age (Carer) | 57.21 ± 12.63 | 60.58 ± 12.07 | 53.27 ± 11.80 | 56.79 ± 13.22 | 62.45 ± 9.44 |
| Sex (Carer), Female (n) | 215 (74.9%) | 46 (68.7%) | 62 (79.5%) | 87 (73.1%) | 20 (87.0%) |
| Region (Carer), Urban (n) | 192 (66.9%) | 38 (56.7%) | 46 (59.0%) | 108 (90.8%) | N/A |
| Living with (Carer), No (n) | 133 (46.3%) | 19 (28.4%) | 47 (60.3%) | 52 (43.7%) | 15 (65.2%) |
| Caring for children (Carer), No (n) | 215 (74.9%) | 53 (79.1%) | 54 (69.2%) | 91 (76.5) | 17 (73.9%) |
| Age (Patient) | 73.79 ± 10.37 | 70.83 ± 8.71 | 74.15 ± 11.78 | 76.69 ± 9.71 | 66.75 ± 8.24 |
| Sex (Patient), female (n) | 159 (55.4%) | 32 (47.8%) | 45 (57.7%) | 79 (66.4%) | 3 (13.0%) |
| Relationship (Carer) | |||||
| Spouse (n) | 128 (44.6%) | 44 (65.7%) | 28 (35.9%) | 37 (31.1%) | 19 (82.6%) |
| Child (n) | 131 (45.6%) | 16 (23.9%) | 42 (53.8%) | 71 (59.7%) | 2 (8.7%) |
| Other (n) | 28 (9.8%) | 7 (10.4%) | 8 (10.3%) | 11 (9.2%) | 2 (8.7%) |
| Diagnosis (Patient) | |||||
| AD (n) | 120 (41.8%) | 17 (25.4%) | 32 (41.0%) | 71 (59.7%) | 0 (0.0%) |
| FTD (n) | 125 (43.6%) | 37 (55.2%) | 30 (38.0%) | 36 (30.3%) | 22 (95.7%) |
| Other dementia (n) | 42 (14.6%) | 13 (19.4%) | 16 (20.5%) | 12 (10.1%) | 1 (4.3%) |
Values are mean ± standard deviation, unless otherwise stated. Region refers to the area respondents are living in (urban or regional area). Living with refers to whether respondents are living with the person they care for (yes or no). AD Alzheimer’s disease, FTD frontotemporal dementia. Study cohort consists of single carer-patient dyads (i.e. one carer providing care for one patient).