Table 1.

Open-Ended Survey Questions Asked by Stakeholder Group

Questions	Adults with CF	Caregivers of people with CF	CF providers
Do you think CF providers should receive more training in PC?	x	x
Does the availability of lung transplant for some people with CF affect whether and how they receive PC?	x	x
In your own words, how would you describe PC in the context of CF care delivery?			x
In your opinion, how does PC fit into CF care in the context of the availability of lung transplant for select patients? Does it change your approach to providing PC or referring patients to PC consultants? Please consider all elements of PC, including symptom management, advance care planning, goals of care, decision making, and end of life, in your response.			x
Please share additional thoughts about any of the questions in this survey.	x	x	x

CF, cystic fibrosis; PC, palliative care.