Table 2.

Case study template—assessed against PFMD patient engagement quality guidance

Project/activity title and date of completion
What was the project/activity? brief description
Why was it important to partner with children, young people, and/or families?
How was the project/activity done—what was involved, process, timelines as identified by comparison with PFMD criteria? These will be identified by comparing against a PPI quality framework
PFMD criteria 1: Shared purpose
PFMD criteria 2: Respect and accessibility
PFMD criteria 3: Representativeness of stakeholders (The mix of people you involve should reflect the needs of the project and the interest of those who may benefit from project outputs)
PFMD criteria 4: Roles and responsibilities (Was there clear roles and responsibilities established upfront. Did everybody understand what was required of them? And was this revisited regularly?)
PFMD criteria 5: Capacity and capability for engagement
PFMD criteria 6: Transparency in communication and documentation
PFMD criteria 7: Continuity and sustainability
What were the benefits/challenges for the study/organisation and children, young people, and/or families?
What were the gaps, as identified by comparison with PFMD criteria? (These will be identified by comparing against the PPI quality framework
Learnings and improvements that could be made for future projects