Table 1.
Participant Demographics
| N (%) | |
|---|---|
| Primary caregiver (16 caregivers) | |
| Identifies as the primary caregiver of a child with SCD | 16 (100%) |
| Identifies as the primary caregiver of more than one person | 12 (75%) |
| Sex of Caregiver | |
| Male | 2 (13.3%) |
| Female | 13 (86.7%) |
| Race of Caregiver | |
| Black | 11 (68.8%) |
| White | 5 (31.3%) |
| Race of Child | |
| Black | 15 (100%) |
| White | 0 (0%) |
| Genotype of child with SCD | |
| Hb SS | 10 (66.7%) |
| Hb SC | 4 (26.7%) |
| Hb SB0 | 1 (6.7%) |
| Distance from Riley Hospital (mode) | |
| Time | 60, 75, 90 mins |
| Distance | 70, 146, 151 miles |
Abbreviations: SCD Sickle Cell Disease