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. 2022 Feb 8;8(1):e31263. doi: 10.2196/31263

Table 2.

Patient information needs regarding basic knowledge of genetic testing (GT) as a medical test.

Category and subcategory Example questions
Basic features of GT

What is GT?

  • How are clinical forms of GT different from direct-to-consumer GT? (Ia)

  • What are the distinctions between the different methods of GT recommended for cancer patients? (Cb)

  • What are the current tests for ovarian cancer? (I)

What does GT do (ie, functions)?

  • What does GT do? (C)

  • What does GT uncover or look for? (I)

  • Can GT determine or test for cancer? (I)

  • Can GT determine other diseases? (I)

  • How is the information from GT used? (I)

Benefits (why GT?)

  • Why would you want to be genetically tested? (I)

  • Why is GT important? (I)

  • How is GT beneficial in saving lives and helping families get pre-screening to detect cancer sources? (I)

  • What benefits can GT results bring to the treatment of OCc? (I, C)

Risks

  • What are the possible risks of GT? (I)
Standards and regulations

  • Who approves GT? Is the FDAd involved? (I)

  • Who is qualified to offer this service? What are their qualifications? (I)

  • What are the standards and regulations related to GT? (I)

aIndicates that the example is from the interviews and co-design sessions.

bIndicates that the example is from the web-based community message analysis.

cOC: ovarian cancer.

dFDA: Food and Drug Administration.