Table 3.

Information needs regarding the genetic testing (GT) process.

Category and subcategory		Example questions or comments
Financial demands
	Cost	What is the cost of GT? I would want to know the costs right up front. (Ia) Do I have to pay for GT? (I) The hard thing I've noticed in the US is that they often can't tell you even how much your cost is, because it depends on your insurance and all these ridiculous things. (I)
	Insurance coverage	I would want to know whether my insurance covers GT. (Cb, I) Does Medicare cover GT? (C)
Taking a GT
	Who does GT?	Can a regular doctor perform GT for cancer genes? (C) Who is doing the test? Who are they? (I) Who are the testing companies? Can we choose which one to use? (I) What lab will you need to go to take the test? (I)
	Procedure and test details	I would be interested in knowing how GT is done and have a better understanding of that. (I) What exactly happens in the lab? (I) How much blood will be drawn? Is there an alternative to a blood draw? (I) Is it painful? (I)
Obtaining results
	Receiving GT results	What is the timeframe for getting GT results? (I) Will I be contacted when they find new information from the test results? If so, how, and when will I be contacted? (I) Can I get a copy of the GT results? (I)
	Genetic counseling	How long do I have to wait to see the genetic counselor? (C) What questions should I ask during a genetic counseling session? (C) I’m not sure whether or not to have my GT results interpreted. (C) Who would I talk to about GT to understand if my ovarian cancer was genetic or not? (C) Who will interpret the results for me? (I) What is the significance of a particular result, like VUSc? (I)

^aIndicates that the example is from the interviews and co-design sessions.

^bIndicates that the example is from the web-based community message analysis.

^cVUS: variants of uncertain significance.