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. 2022 Feb 8;8(1):e31263. doi: 10.2196/31263

Table 6.

Patient preferences concerning information quality.

Information quality dimension Example participant comments
Relevance
  • “[A website is of interest to me when it is about] BRCAa [and] linked to ovarian cancer.” [Participant 18]

Understandability
  • “The basics are good. The nurses break it down to basics and to my level.” [Participant 2]

  • “I wish they would have just broken it down in layman terms for middle aged women that aren’t so tech savvy. Just simple, simple words.” [Participant 18]

Conciseness
  • “I think your text is informative, but not overwhelmingly long. It’s short and concise and to the point.” [Participant 14]

  • “People may be fearful to look at something that’s a little more detailed.” [Participant 17]

Usability

Tables, bullets, and white spaces
  • “Maybe a table would help. Genetic drives of cancer. There is a lot of good statistics in there...I know I tend to look at tables and statistics.” [Participant 17]

  • “I like it because it’s nice and clean and has a lot of white space and bullets.” [Participant 9]

  • “I really liked that you have a lot of white space, you know, on the page because I think that that helps make it less intimidating.” [Participant 18]

  • “There’s a fair amount of space. I mean, it’s not overloaded.” [Participant 15]


Additional sources
  • “I think...providing basic information and with links to find out more. Someone wants to kind of expand on that basic information.” [Participant 2]

  • “...have the ability to go deep or stay high.” [Participant 16]

Appropriateness
  • A comment on an image used on the mockup webpage about test results: “She looks very happy for having such a serious conversation. She just looks just a little too happy for that. I mean, it, as I remember, it was, it was stressful, not horrifically stressful, but it was stressful waiting for the results.” [Participant 16]

  • “I don’t know if I’d want to show [a picture that shows tubes containing blood] just because of those few people I’ve met that are so fearful of blood.” [Participant 13]

Being sympathetic
  • “...what would get my attention would be if there was something that said, Hey, you don’t have to have cancer [to get genetic testing]. Don’t be afraid of this. It’s not a death sentence. It’s not, you know, you’re looking into a crystal ball or having someone read your future.” [Participant 18]

Availability
  • “[The mockup website] probably would have been a comfort to me to be able to go and look these things up. And just because so many times in the beginning, I found myself going back over the same stuff over and over, what does this mean? What does this mean? And I think, well, I already read that, but did I miss something when I read it.” [Participant 8]

  • “It’s something that, you know, that you can take with you, especially cause when you’re, you’re going somewhere and all of a sudden you have a question about, well, was that really what I thought it was and you can go back and look at it.” [Participant 17]

aBRCA: breast cancer gene.