Table 1.
Descriptions and values of measures in people with Lewy body-related cognitive disorders and care partners (n = 76 participant-dyads).
| Measures | Scale Description | Results | ||||||
|---|---|---|---|---|---|---|---|---|
| Mean (SD), Range | Mann–Whitney U Test | |||||||
| Aims of the Measure | Completed by Whom | Number of Items | Scoring | Max Score | People with Lewy Body Cognitive Disorders | Care Partners | ||
| Brief Resilience Scale (BRS) | Capacity to bounce back from stress | Both participants | 6 | 5-point Likert, 1–5 a | 5.00 | 3.23 (0.71), 1.33–4.67 |
3.79 (0.82), 1.50–5.00 | 0.000 *** |
| Relationship Satisfaction Scale (RSS) | Communication, conflict resolution, degree of affection, intimacy, and overall relationship satisfaction | Both participants | 7 | 7-point Likert, 0–6 a | 42 | 33.16 (7.47), 12–42 |
29.05 (10.36), 2–42 |
0.016 * |
| Hospital Anxiety and Depression Scale (HADS) | Anxiety, depression | Both participants | 7 anxiety | 4-point Likert, 0–3 b | 21 | 7.26 (4.15), 0–19 | 5.77 (4.31), 0–18 | 0.021 * |
| 7 depres- sion | 4-point Likert, 0–3 b | 21 | 6.38 (2.73), 0–13 | 4.34 (3.87), 0–17 | 0.000 *** | |||
| EuroQoL-5D-3L (EQ5D) | Health-related quality of life | Both participants | 5 (index score) | 3-point Likert, 1–3 a | 1.000 | 0.541 (0.32), −0.113–1.000 | 0.806 (0.22), −0.016–1.000 | 0.000 *** |
| 1 (visual analogue scale) | 0–100% a | 100% | 64.93 (16.56), 25–95 | 75.90 (15.45), 35–100 | 0.000 *** | |||
| Parkinson’s Disease Questionnaire-39 (PDQ-39) | PD-specific health-related quality of life in 8 dimensions | Interview with people with PD | 39 | 0–100% b | 100% | 34.43 (14.69), 6.93–77.50 | NA | NA |
| Neuropsychiatric Inventory (NPI) | Frequency and severity of 12 neuropsychiatric symptoms | Proxy rated by care partners | 12 | Frequency (1–4) × severity (1–3) b | 144 | 16.17 (14.34), 0–58 | NA | NA |
| Zarit Burden Interview (ZBI) | Degree of burden | Care partners only | 22 | 5-point Likert, 0–4 b | 88 | NA | 31.64 (16.06), 2–74 | NA |
| Relatives’ Stress Scale (Rel.SS) | Amount of upset and stress experienced by the care partner due to care provision | Care partners only | 15 | 5-point Likert, 0–4 b | 60 | NA | 22.21 (11.22), 0–55 | NA |
| Short-Form 12 Health Survey (SF-12) | Physical and mental health | Care partners only | 6 physical health | Binary (yes/no) or Likert a | 100 | NA | 49.80 (10.18), 24.34–66.80 | NA |
| 6 mental health | Binary (yes/no) or Likert a | 100 | NA | 47.75 (11.48), 17.01–62.85 | NA | |||
a—higher scores better, b—lower scores better, NA—not applicable, PD—Parkinson’s disease, SD—standard deviation. Notes: *** p < 0.001, * p < 0.05.