Table 1.
Characteristics of Studies
| Variable | % Yes (n) | References |
|---|---|---|
| Country | ||
| United States | 43% (47) | 4, 10, 16, 34, 37, 38, 50, 51, 53, 55, 56, 58–60, 70–73, 77–79, 83, 89, 94–96, 98, 101, 102, 105, 106, 109, 110, 113–120, 124, 126, 128, 131–133 |
| United States + Other Country | 2% (2) | 54, 66 |
| Canada | 6% (6) | 45, 46, 64, 75, 103, 107 |
| Europe | 28% (31) | 9, 36, 40–42, 44, 47, 49, 52, 65, 68, 69, 74, 76, 82, 84, 85, 87, 88, 90, 92, 97, 99, 104, 108, 125, 127, 130, 134, 147, 148 |
| Australia & New Zealand | 3% (3) | 43, 48, 91 |
| Asia | 6% (7) | 61, 62, 86, 112, 121–123 |
| Middle East | 7% (8) | 7, 39, 67, 81, 93, 100, 111, 129 |
| Africa | 2% (2) | 33, 35 |
| Central and South America | 3% (3) | 57, 63, 80 |
| Number of Sites | ||
| 1 | 35% (38) | 4, 7, 33–37, 42, 43, 45, 53, 55, 56, 63, 65, 67, 70, 77, 78, 80, 87, 88, 90, 93, 96, 100, 101, 111, 112, 118, 121–123, 127, 129–131, 133 |
| 2 | 16% (17) | 10, 16, 39, 50, 59, 64, 68, 71, 82, 86, 94, 110, 113, 114, 119, 120, 132 |
| 3 | 4% (5) | 57, 60, 66, 92, 128 |
| 4 | 3% (4) | 38, 61, 103, 126 |
| 6 | 13% (14) | 44, 46, 47, 73, 89, 105, 107, 109, 115–117, 124, 125, 147 |
| ≥7 | 14% (15) | 9, 48, 51, 69, 76, 83–85, 95, 98, 99, 104, 106, 134, 148 |
| Multiple not specified | 15% (16) | 40, 41, 49, 52, 54, 58, 62, 72, 74, 75, 79, 81, 91, 97, 102, 108 |
| Number of Participants: Patients | ||
| ≤50 | 17% (19) | 36–38, 40, 43, 57, 67, 73, 76, 84–87, 97, 99, 102, 129, 131, 148 |
| 51–100 | 2% (2) | 52, 105 |
| 101–150 | 3% (3) | 122, 130, 133 |
| >150 | 3% (3) | 66, 77, 106 |
| Number of Participants: Parents | ||
| ≤50 | 30% (33) | 4, 39, 40, 43–46, 57, 63, 67, 74, 80, 82, 84–87, 92–96, 99, 100, 107, 110, 111, 113, 128, 129, 131, 134, 148 |
| 51–100 | 12% (13) | 9, 33, 35, 41, 47, 48, 73, 75, 78, 112, 115, 127, 147 |
| 101–150 | 3% (4) | 79, 101, 109, 117 |
| >150 | 8% (9) | 7, 10, 34, 59, 114, 118–120, 132 |
| Number of Participants: Clinicians | ||
| ≤50 | 33% (36) | 9, 40, 42, 47, 51, 53, 55, 57, 59–61, 63–65, 67, 68, 70, 74, 80, 82, 84, 85, 88, 92, 96, 98, 103, 108, 110, 111, 124–126, 131, 134, 148 |
| 51–100 | 8% (9) | 16, 49, 50, 52, 56, 69, 81, 83, 91 |
| 101–150 | 4% (5) | 62, 71, 72, 89, 123 |
| >150 | 4% (5) | 54, 58, 104, 121, 124 |
| Number of Participants: Other * | ||
| ≤50 | 4% (5) | 86, 103, 110, 123, 148 |
| Study Design ** | ||
| Qualitative: Focus Groups | 12% (13) | 16, 40, 60, 61, 75, 76, 88, 95, 108, 124, 125, 131, 148 |
| Qualitative: Interviews | 56% (61) | 4, 9, 36–39, 41–48, 51, 55, 57, 61–65, 67, 68, 70, 72–75, 78, 80, 82–88, 92–94, 97–100, 102, 103, 105, 107–109, 111, 113, 115, 116, 122, 127, 128, 134, 147, 148 |
| Quantitative: Cross-Sectional Survey | 39% (42) | 7, 10, 33–35, 49, 52–54, 56, 58, 59, 66, 69, 71, 77, 79, 81, 89–91, 96, 101, 102, 104, 106, 110, 112–114, 117–124, 126, 130, 132, 133 |
| Mixed Methods | 6% (7) | 44, 88, 102, 108, 122, 124, 148 |
| Other | 3% (3) | 44, 50, 122 |
| Barrier & Facilitators to Communication | ||
| Individual | 90% (100) | 4, 7, 9, 10, 16, 33–47, 49–75, 77–123, 125, 128, 130, 133, 147, 148 |
| Team | 9% (10) | 16, 42, 44, 45, 55, 60, 70, 73, 124, 125 |
| Organization/System | 30% (33) | 16, 39, 41, 42, 44–46, 48, 49, 51, 52, 54, 55, 57, 61, 64, 69, 73, 75, 76, 78, 79, 83, 96, 98, 99, 103, 106–108, 116, 124, 126 |
| Collaborating Hospital | 2% (2) | 16, 70 |
| Community | 5% (6) | 16, 61, 102, 118, 127, 128 |
| Policy | 4% (5) | 16, 54, 75, 89, 100 |
| Clinical Factors | 16% (17) | 46, 50, 57, 61, 66, 84, 88, 90, 97, 102, 106, 128, 130–134 |
*
Other participants included interpreters, research coordinators, ethics committee members, child life specialists, hematology technicians, patient siblings, and healthcare administrators.
**
Study designs were not mutually exclusive.