Table 1.
Round 1 | Round 2 | |||
---|---|---|---|---|
Demographic variable/question | N | % | N | % |
N=70 | 100 | N=45 | 100 | |
Primary role | ||||
Healthcare professional | 36.0 | 51.4 | 20.0 | 44.4 |
Academic/Scientific staff (e.g. laboratory scientist) | 3.0 | 4.3 | 3.0 | 6.7 |
Health service administrator (e.g. health service manager, CEO) | 9.0 | 12.9 | 6.0 | 13.3 |
Researcher involved with PRO implementation | 14.0 | 20.0 | 11.0 | 24.4 |
IT professional/health IT developer | 3.0 | 4.3 | 1.0 | 2.2 |
Consumer- person with a personal experience with cancer, a carer for person with cancer, a family member of someone with cancer | 5.0 | 7.1 | 4.0 | 8.9 |
If healthcare professional, population of patient focus* | ||||
Haematology | 12.0 | 15.4 | 7.0 | 15.9 |
Medical oncology | 24.0 | 30.8 | 15.0 | 34.1 |
Radiation oncology | 17.0 | 21.8 | 7.0 | 15.9 |
Cancer surgery | 5.0 | 6.4 | 3.0 | 6.8 |
Bone marrow transplant | 4.0 | 5.1 | 2.0 | 4.6 |
If healthcare professional, age group of patient focus* | ||||
Paediatric | 4.0 | 5.1 | 2.0 | 4.6 |
Adolescents/young adults | 9.0 | 11.5 | 4.0 | 9.1 |
Adults | 32.0 | 41.0 | 17.0 | 38.6 |
Geriatric | 8.0 | 10.3 | 4.0 | 9.1 |
Familiarity with PRO collection | ||||
Expert (very familiar with PROs and regularly uses or supports use of PROs) | 29.0 | 41.4 | 23.0 | 51.1 |
Intermediate (some familiarity with PROs, moderate usage/support) | 26.0 | 37.1 | 12.0 | 26.7 |
Novice (new to PRO use) | 15.0 | 21.4 | 10.0 | 22.2 |
If not novice, role in PRO collection/use* | ||||
System builder (building infrastructure to collect PROs) | 23.0 | 29.5 | 15.0 | 34.1 |
Collector or analyst of PROs | 37.0 | 47.4 | 24.0 | 54.6 |
Participant providing input | 6.0 | 7.7 | 4.0 | 9.1 |
State/territory | ||||
NSW | 22.0 | 31.4 | 16.0 | 35.6 |
SA | 1.0 | 1.4 | 1.0 | 2.2 |
VIC | 4.0 | 5.7 | 4.0 | 8.9 |
QLD | 21.0 | 30.0 | 9.0 | 20.0 |
WA | 22.0 | 31.4 | 15.0 | 33.3 |
Experience (delivering or receiving) cancer care in rural and remote areas | ||||
No | 42.0 | 60.0 | 29.0 | 65.9 |
Yes | 28.0 | 40.0 | 15.0 | 34.1 |
Primary setting at which care is delivered or received | ||||
Public hospital | 55.0 | 78.6 | 31.0 | 68.9 |
Private hospital | 1.0 | 1.4 | 1.0 | 2.2 |
Private specialist practice | 2.0 | 2.9 | 2.0 | 4.4 |
Other | 12.0 | 17.1 | 11.0 | 24.4 |
*Multiple answers were permitted
Abbreviations: CEO, Chief Executive Officer; PRO, patient reported outcome; IT, information technology; NSW, New South Wales; SA, South Australia; VIC, Victoria; QLD, Queensland; WA, Western Australia