Table 1.

Demographic Details of Participants

		N or median (range)
Children and Young People (n = 3)
Age (yrs)		14 (10–17)
Gender	Female:Male	2:1
Diagnosis	Cancer	2
	Neurological	1
Parent/carers (n = 7)
Age (yrs)		53 (21–65)
Gender	Female:Male	3:4
Relationship to child	Father	4
	Mother	2
	Sibling Caregiver	1
Diagnosis of child	Cancer	4
	Congenital	2
	Neurological	1
Age of child with LLLTC (yrs)		15 (0–17)
Commissioners (n = 2)
Gender	Female:Male	2:0
Geographical location	Yorkshire and Humber	2