Table 1.
Satisfaction survey responses from genetic counselors.
| Item | Phase 1 (n=9), n (%) | Phase 2 (n=7), n (%) | |
| Overall, the information that you were asked to assess within the FH Family Share website was |
|
|
|
|
|
Very easy to find | 6 (67) | 6 (86) |
|
|
Somewhat easy to find | 3 (33) | 1 (14) |
| Overall, the information that you found within the FH Family Share website was |
|
|
|
|
|
Very easy to understand | 5 (56) | 6 (86) |
|
|
Somewhat easy to understand | 4 (44) | 1 (14) |
| Is the FH Family Share website a resource worth returning to? |
|
|
|
|
|
Yes | 9 (100) | 7 (100) |
|
|
No | 0 (0) | 0 (0) |
| The FH Family Share website will ease my workflow in a patient encountera |
|
|
|
|
|
Completely agree | —b | 2 (29) |
|
|
Agree | — | 3 (43) |
|
|
Neither agree nor disagree | — | 2 (29) |
| The FH Family Share website is likely to improve follow-up patient carea |
|
|
|
|
|
Completely agree | — | 3 (43) |
|
|
Agree | — | 4 (57) |
|
|
Neither agree nor disagree | — | 0 (0) |
| As a provider I feel the patient is most likely toa,c |
|
|
|
|
|
Use Learn modules as a knowledge resource | — | 4 (57) |
|
|
Build a family tree using AboutMe | — | 0 (0) |
|
|
Calculate risk of heart attack | — | 1 (14) |
|
|
Send a letter to family members | — | 2 (29) |
|
|
Use website information to discuss familial hypercholesterolemia with family members | — | 0 (0) |
| Do you find the website figures/images/diagrams useful? |
|
|
|
|
|
Yes | — | 6 (86) |
|
|
No | — | 0 (0) |
|
|
Otherd | — | 1 (14) |
aThe question was added for phase 2.
bNo data for phase 1.
cOnly 1 option could be selected.
d“Some were useful; more scientific diagrams were not as helpful from a patient perspective” [Participant 1, genetic counselor].