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. 2022 Feb 15;9(1):e32568. doi: 10.2196/32568

Table 2.

Representative comments from genetic counselors in response to free-text questions. (Participant 4 did not provide free-text responses in phase 2.)

Item Representative comments

Phase 1 Phase 2
What did you like most about the FH Family Share website? “Solid basic information. Good patient reading level.” [Participant 4]
“The education materials, getting contact info for the clinic.” [Participant 5]
“The importance of informing family members and assistance to do this, especially the email.” [Participant 8]
“It was interactive and user-friendly. I think this will provide patients with a good tool to learn more about FH and how to easily share this information with their relatives.” [Participant 2]
“Nice resource for families including the ability to share the resource and family letter within the website” [Participant 6]
What did you like least about the FH Family Share website? “Ensure appropriate nomenclature is being used for heterozygous vs. homozygous FH.” [Participant 1]
“Add more infographics about inheritance, genetics etc” [Participant 3]
“The order of the modules under learn and the ambiguousness of ‘Discover’” [Participant 8]
“Images could use work” [Participant 1]
“There is a lot of clicking into different tabs” [Participant 3]
What additional information or functionality would you like to see on the FH Family Share website? “Personalization of email tool.” [Participant 2]
“Next steps” for family members, how to find provider, how to share info with family.” [Participant 3]
“Use for other health care providers w/ limited experience in FH, incorporate Dutch Lipid Network, etc” [Participant 7]
What more could we do to improve the FH Family Share website? “More meaningful Images.” [Participant 6]
“A little more information about the About Me tool would be helpful prior to them starting it.” [Participant 7]
“Again, nothing further to add. Looks great!“ [Participant 2]
“Make thing as concise as possible” [Participant 3]
“Define terms or link to where they are defined.” [Participant 5]