Table 2.

Additional comments from 8 respondents to the statement “ERN-RND increases awareness of rare neurological diseases”

Comment	Profile
I think we can always do better about raising awareness about healthcare professionals and general public. It's a huge work to do	Scientist
It is difficult to keep all media areas going	Healthcare professional, patient (advocate)
Es ist eine gute Idee (translation: “it is a good idea”)	Patient (advocate)
How could a site and newsletters entirely in English play this role in France?	Patient association
The ERNs are super important not just to raise awareness but to improve access to expertise and improve services	Patient (advocate)
Increasing amount of data presented	Healthcare professional
I think the communication is quite good and being so active also on social media is very good in order to reach the broader RND community	Patient (advocate)
I didn’t know	Healthcare professional