Table 4.
Reported reasons for clinical trial non-participation among AYA cancer patients, AYA HOPE study
| Reason | N (%)* |
|---|---|
| Any | 29 (65.9) |
| Concern about involvement with clinical trials | |
| Worried that treatment was insufficiently tested | 17 (38.6) |
| Worried about side effects | 14 (31.8) |
| Worried about being treated like guinea pig | 7 (15.9) |
| Worried about receiving placebo | 7 (15.9) |
| Worried about having to switch doctors | 7 (15.9) |
| Did not think a trial would help | 6 (13.6) |
| Any concern reason | 25 (56.8) |
| Problems with access to clinical trials | |
| Were too sick to enroll in a trial | 8 (18.2) |
| Could not find a trial nearby | 6 (13.6) |
| Insurance would not pay for all or part of trial | # |
| Any access reason | 9 (20.5) |
| Both concern and access reason | 5 (11.4) |
*
Percentages are based on 44 patients who reported knowing that a clinical trial was available for their type and stage of cancer, but who did not participate in a trial (either by self-report or medical record abstraction). Percentages for individual reasons or groups of reasons do not sum to 100% because patients were asked to select all reasons that applied.
#
Data not shown due to cell size <5