Table 2.
Thinking about your life after Parkinson’s disease (PD) diagnosis, please consider whether the changes listed in categories A to G have occurred at all in your experience. Please consider your agreement with each statement in a 1–5 scale: |
(1) Strongly disagree (2) Disagree (3) Not sure (4) Agree (5) Strongly agree |
A. Greater appreciation for life PD gave me a new start, made me live life to its fullest, changed my focus in life. Now I appreciate and enjoy life more, I enjoy what I still can do. PD gave me an increased awareness. I learnt to accept the lack of control of situations, and uncertainty. I do not take health or any other thing for granted. Now I put things on perspective |
1 2 3 4 5 |
B. Changes in life philosophy PD made me think about the true purpose of life. My religious/spiritual beliefs deepened because of PD |
1 2 3 4 5 |
C. Improved personal relationships PD strengthened my relationships with others: spouse, family, and/or friends. PD made me more tolerant. PD made me less judgemental of others. |
1 2 3 4 5 |
D. Positive influence on others I have been an inspiration to others. PD changed other people’s perception of me for the better. Other people appreciate me more because of PD. |
1 2 3 4 5 |
E. Personal inner strength PD made me more aware of my strengths Improved my coping skills, made me more patient, empathetic, more humble, self-compassion, an opportunity to grow up. Improved resilience, self-esteem, learnt to put myself first. I am more humble, compassionate to others and myself. Learnt that I can cope with much more than I thought, more patience |
1 2 3 4 5 |
F. Acquisition of a healthier lifestyle I made positive changes in my diet, increased physical exercise, I pay more attention to my habits and lifestyle |
1 2 3 4 5 |
G. Changes in personal relationships and activities New activities and interests. Increased traveling. New professional projects. New relationships and engagement within the PD community. Involvement in PD advocacy. Reduction of time devoted to work. Increased creativity, more time devoted to creative activities. |
1 2 3 4 5 |
H. If there are other positive changes in your life you feel have not been mentioned, please outline these here: |