TABLE 1.

instruments from 2019 study.

	Instrument	Year	Issuing body
1	GDPR	2016	European Union
2	Charter of Fundamental Rights and Freedoms of the European Union	2000	European Union
3	European Convention on Human Rights	1953	Council of Europe
4	Convention for the Protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine: Convention on Human Rights and Biomedicine (Oviedo Convention)	1997	Council of Europe
5	Convention for the protection of individuals with regard to the processing of personal data	1980 (revised 2018)	Council of Europe
6	Recommendation CM/Rec (2016)6 of the Committee of Ministers to member States on research on biological materials of human origin	2016	Council of Europe
7	Additional protocol to the Convention on Human Rights and Biomedicine, concerning Biomedical Research	2005	Council of Europe
8	International Convention on Economic, Social and Cultural Rights	1966	United Nations
9	Universal Declaration on Human Rights	1948	United Nations
10	Universal Declarationon Bioethics and Human Rights	2005	UNESCO
11	International Declaration on Human Genetic Data	2003	UNESCO
12	Universal Declaration on the Human Genome and Human Rights	1997	UNESCO
13	Recommendation on Health Data Governance	2017	OECD
14	OECD Guidelines on Human Biobanks and Genetic Research Databases	2009	OECD
15	Principles and Guidelines for Access to Research Data from Public Funding	2007	OECD
16	Declaration of Helsinki	2013 edition	World Medical Association
17	Declaration of Taipei on Ethical Considerations Regarding Health Databases and Biobanks	2002 (revised 2016)	World Medical Association
18	International Ethical Guidelines for Health-related Research Involving Humans	2016	Council for International Organizations of Medical Sciences