Table 1.
Sociodemographic and Clinical Characteristics of Patients and Caregivers
| Characteristics | Patients (n=94)ᵃ | Caregivers (n=79)ᵃ | ||
|---|---|---|---|---|
| nAMD (n=49) | DME (n=46) | nAMD (n=47) | DME (n=33) | |
| Gender, n (%) | ||||
| Female | 37 (76%) | 18 (39%) | 32 (68%) | 21 (64%) |
| Age, n (%) | ||||
| <60 years | 5 (10%) | 22 (48%) | 18 (38%) | 15 (45%) |
| 60–69 years | 10 (20%) | 18 (39%) | 17 (36%) | 15 (45%) |
| 70–79 years | 24 (49%) | 5 (11%) | 8 (17%) | 3 (9%) |
| ≥80 years | 10 (20%) | 1 (2%) | 4 (9%) | 0 (0%) |
| Working status, n (%) | ||||
| Retired | 40 (82%) | 15 (33%) | 21 (45%) | 11 (33%) |
| Working full/part time or self-employed | 3 (6%) | 15 (33%) | 18 (38%) | 16 (49%) |
| Looking after home or family | 1 (2%) | 2 (4%) | 2 (4%) | 0 (0%) |
| Disabled | 1 (2%) | 8 (17%) | 0 (0%) | 0 (0%) |
| Unemployed/ seeking work | 1 (2%) | 3 (7%) | 2 (4%) | 4 (12%) |
| Other | 2 (4%) | 1 (2%) | 3 (6%) | 2 (6%) |
| Not captured | 1 (2%) | 2 (4%) | 1 (2%) | 0 (0%) |
| Countries, n (%) | ||||
| Canada | 10 (20%) | 7 (15%) | 7 (15%) | 5 (15%) |
| France | 10 (20%) | 10 (22%) | 7 (15%) | 3 (9%) |
| Germany | 10 (20%) | 10 (22%) | 10 (21%) | 10 (30%) |
| Italy | 3 (6%) | 2 (4%) | 10 (21%) | 0 (0%) |
| Spain | 7 (14%) | 8 (17%) | 4 (9%) | 5 (15%) |
| USA | 9 (18%) | 9 (20%) | 9 (19%) | 10 (30%) |
| Number of anti-VEGF injections per year, n (%) | ||||
| 1 to 4 | 5 (10%) | 8 (17%) | 11 (23%) | 3 (9%) |
| 5 to 9 | 13 (27%) | 10 (22%) | 10 (21%) | 8 (24%) |
| 10 to 14 | 12 (24%) | 11 (24%) | 10 (21%) | 7 (21%) |
| 15 to 19 | 0 (0%) | 0 (0%) | 2 (4%) | 3 (9%) |
| 20 or moreb | 2 (4%) | 4 (9%) | 0 (0%) | 4 (12%) |
| Missing | 17 (35%) | 13 (28%) | 14 (30%) | 8 (24%) |
| Education level, n (%) | ||||
| Less than/Some high school | 8 (16%) | 8 (17%) | – | – |
| Completed high school or GED | 10 (20%) | 6 (13%) | – | – |
| Some college | 4 (8%) | 7 (15%) | – | – |
| Associate’s/Bachelor’s degree | 9 (18%) | 10 (22%) | – | – |
| Post-graduate degree | 6 (12%) | 4 (9%) | – | – |
| Otherc | 11 (22%) | 10 (22%) | – | – |
| Not captured | 1 (2%) | 2 (4%) | – | – |
| Comorbidities, n (%) | ||||
| Cataracts | 17 (35%) | 13 (28%) | – | – |
| High blood pressure | 9 (18%) | 6 (13%) | – | – |
| Diabetes | 7 (14%) | Not applicabled | – | – |
| Thyroid issues | 5 (10%) | 1 (2%) | – | – |
| Relationship to patient, n (%) | ||||
| Partner/spouse | - | - | 18 (38%) | 15 (45%) |
| Child | - | - | 17 (36%) | 3 (9%) |
| Parent | - | - | 2 (4%) | 8 (24%) |
| Friend | - | - | 4 (9%) | 2 (6%) |
| Othere | - | - | 6 (13%) | 5 (15%) |
| Living status, n (%) | ||||
| Lives with patient | - | - | 24 (51%) | 21 (64%) |
| Does not live with patient | - | - | 23 (49%) | 9 (27%) |
| Not captured | - | - | 0 (0%) | 3 (9%) |
Notes: Data as collected during the interview. ᵃThe total number of patients (n=94) and caregivers (n=79) is lower than that of the patient and caregiver nAMD and DME samples combined because one patient had both nAMD and DME. bOf these six patients, four (66%) had bilateral disease, while, for the remaining two patients, there was no mention in the transcript of unilateral or bilateral disease. cDue to local specificities/wording, the analyst could not categorize the level of education for all participants. dNot applicable as, per definition, DME is a complication of diabetes, and diabetes is not considered a comorbidity for DME patients. eIncludes: sister, brother, mother-in-law, nephew, uncle, work colleague, grandmother, neighbor, ex-husband.