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. 2022 Mar 8;12(3):e055287. doi: 10.1136/bmjopen-2021-055287

Table 3.

Topics related to relationships with pharmaceutical companies covered by 26 patient group policies reported on websites

Patient group number* Topic of policy
Composition and authority of board Acceptance of donations and revenue generation Independence of decision-making Endorsements Material assistance to patient group members by a donor Other interactions between patient members of the group and a donor Independent monitoring of activities and compliance with policies
1 x x x x x
2 x x x x x x x
3 x x x x x
4 x x x x x x x
5
6
7
8 x x x x
9 x x x
10 x x x
11 x x x
12 x x x x x
13 x x x x x
14 x x
15 x x x
16 x x x x x
17
18 x x x x x x x
19 x
20
21 x
22 x x x
23 x
24 x
25 x x x
26 x
Total (%) 11 (42.3) 16 (61.5) 13 (50.0) 15 (57.7) 8 (30.8) 7 (26.9) 5 (19.2)

*Patient groups have been anonymised.