Table 3.
Patient group number* | Topic of policy | ||||||
Composition and authority of board | Acceptance of donations and revenue generation | Independence of decision-making | Endorsements | Material assistance to patient group members by a donor | Other interactions between patient members of the group and a donor | Independent monitoring of activities and compliance with policies | |
1 | x | x | x | x | x | ||
2 | x | x | x | x | x | x | x |
3 | x | x | x | x | x | ||
4 | x | x | x | x | x | x | x |
5 | |||||||
6 | |||||||
7 | |||||||
8 | x | x | x | x | |||
9 | x | x | x | ||||
10 | x | x | x | ||||
11 | x | x | x | ||||
12 | x | x | x | x | x | ||
13 | x | x | x | x | x | ||
14 | x | x | |||||
15 | x | x | x | ||||
16 | x | x | x | x | x | ||
17 | |||||||
18 | x | x | x | x | x | x | x |
19 | x | ||||||
20 | |||||||
21 | x | ||||||
22 | x | x | x | ||||
23 | x | ||||||
24 | x | ||||||
25 | x | x | x | ||||
26 | x | ||||||
Total (%) | 11 (42.3) | 16 (61.5) | 13 (50.0) | 15 (57.7) | 8 (30.8) | 7 (26.9) | 5 (19.2) |
*Patient groups have been anonymised.