Skip to main content
. Author manuscript; available in PMC: 2023 Apr 1.
Published in final edited form as: Am J Med Genet A. 2022 Jan 3;188(4):1088–1101. doi: 10.1002/ajmg.a.62619

Table 1:

Respondent Characteristics by Child’s Diagnostic Status

Diagnosed n (% in row) Undiagnosed1 n (% in row) Total n (% in column)
Gender
 Female 11 (40.7%) 16 (59.3%) 27 (90.0%)
 Male 2 (66.7%) 1 (33.3%) 3 (10.0%)
Race/Ethnicity
 Hispanic (any race) 6 (46.2%) 7 (53.8%) 13 (43.3%)
 White (non-Hispanic) 5 (45.5%) 6 (54.5%) 11 (36.6%)
 Asian-American (non-Hispanic) 1 (25.0%) 3 (75.0%) 4 (13.3%)
 More than one race/ethnicity 1 (50.0%) 1 (50.0%) 2 (6.6%)
Household Income
 $50,000 or less 2 (28.6%) 5 (71.4%) 7 (23.3%)
 More than $50,000 to $100,000 3 (42.9%) 4 (57.1%) 7 (23.3%)
 More than $100,000 to $150,000 5 (55.6%) 4 (44.4%) 9 (30.0%)
 Greater than $150,000 3 (42.9%) 4 (57.1%) 7 (23.3%)
Education
 Primary school or less 1 (50.0%) 1 (50.0%) 2 (6.6%)
 Some high school 2 (40.0%) 3 (60.0%) 5 (16.7%)
 High school degree or GED 1 (25.0%) 3 (75.0%) 4 (13.3%)
 Some college or associates degree 2 (66.7%) 1 (33.3%) 3 (10.0%)
 College degree 4 (57.1%) 3 (42.9%) 7 (23.3%)
 Advanced coursework or degree 3 (33.3%) 6 (66.7%) 9 (30.0%)
Primary Language
 English 8 (40.0%) 12 (60.0%) 20 (66.6%)
 Spanish 5 (50.0%) 5 (50.0%) 10 (33.3%)
Number of UDN Children
 One 9 (39.1%) 14 (60.9%) 23 (76.7%)
 Two 4 (66.7%) 2 (33.3%) 6 (20.0%)
 Three 0 (0.0%) 1 (100%) 1 (3.3%)
Total All Parent Participants 13 (43.3%) 17 (56.7%) 30 (100%)
1

Includes three participant with candidate or emerging diagnoses that were not confirmed at the time of interview.