Table 2:

Types and Quality of Perceived Utility and Disutility

	Diagnosed (n=13)	Undiagnosed (n=17)	All (n=30)
Health Status or Outcomes
Positive	1 (7.7%)	0 (0.0%)	1 (3.3%)
No Impacts	12 (92.3%)	17 (100%)	29 (96.7%)
Healthcare Management and Access
Positive	7 (53.8%)	2 (11.8%)	9 (30.0%)
Mixed (both positive and negative)	1 (7.7%)	2 (11.8%)	3 (10.0%)
Negative	0	0	0
No Impact	5 (38.5%)	13 (76.5%)	18 (60.0%)
Psychological or Emotional Well-Being
Positive	4 (30.8%)	3 (17.6%)	7 (23.3%)
Mixed (both positive and negative)	8 (61.5%)	6 (35.3%)	14 (46.7%)
Negative	0	4 (23.5%)	4 (13.3%)
No Impact	1 (7.7%)	4 (23.5%)	5 (16.7%)
Social Connections and Research Opportunities
Positive	5 (38.5%)	2 (11.8%)	7 (23.3%)
Mixed (both positive and negative)	2 (15.4%)	0	2 (6.7%)
Negative	0	0	0
No Impact	6 (46.1%)	15 (88.2%)	20 (70.0%)
Not attempted	5	9	1
Not available	1	2	3
Already connected	0	4	4