Table 1.

Tests, interviews und questionnaires (alphabetic order) used for study purposes [25]

Name	Reference	Period of observation; type of survey	Interpretation
Barthel Index - activities of daily living	[26]	At the visit; Caregiver interview	10 subitems. Total score 0-100. The higher the better.
Clinical Dementia Rating Scale (CDR)	[27]	At the visit; Medical opinion based on the assessment of the PWAD and caregiver interview	Global score 0-3. Score 2: moderate dementia; Score 3: severe dementia
End-of-Life in Dementia Scale: Symptom Management (EOLD-SM)	[28]	Last 90 days; Caregiver interview	9 subitems. Total score 0-45. The higher the better symptom control.
Mini-Mental-State-Examination (MMSE)	[29]	At the visit; Cognitive test	Total score 0-30. The higher the less cognitive impairment.
Mini-Suffering-State-Examination (MSSE)	[30]	At the visit; Medical opinion based on the assessment of the PWAD and caregiver interview	10 subitems. Total score 0-10. The higher the more suffering.
Neuropsychiatric Inventory (NPI)	[31]	Last four weeks; Caregiver interview	12 subitems. Total score 0-144. The higher the more neuropsychiatric symptoms.
Pain Assessment in Dementia (PAINAD)	[32]	At the visit; 5-minute observation by study physician	5 subitems. Total score 0-10. The higher the more pain.
Quality of Life in Late Stage Dementia (QUALID)	[33]	Last week; Caregiver interview	11 subitems. Total score 11-55. The higher the lower quality of life.