Table 2.
All identified focus group themes and frequencies.
| Identified theme | Corporate (n=196), n (%) | Formal caregiver (n=94), n (%) | Franchise owner (n=222), n (%) | Informal caregivers (n=38), n (%) | Total (n=550), n (%) | ||||||
| Care services | 53 (27) | 22 (23.4) | 47 (21.2) | 12 (31.6) | 134 (24.4) | ||||||
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Ability to react to changes | 2 (3.8) | 2 (9.1) | 8 (17) | 3 (25) | 15 (11.2) | |||||
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Addressing family needs | 1 (1.9) | 0 (0) | 2 (4.3) | 0 (0) | 3 (2.2) | |||||
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Assess and support cognition or mental health | 12 (22.6) | 0 (0) | 6 (12.8) | 0 (0) | 18 (13.4) | |||||
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Expanding care services | 6 (11.3) | 0 (0) | 2 (4.3) | 0 (0) | 8 (6) | |||||
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Individualized care | 7 (13.2) | 1 (4.5) | 12 (25.5) | 0 (0) | 20 (14.9) | |||||
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Maintaining patient in home | 1 (1.9) | 0 (0) | 0 (0) | 0 (0) | 1 (0.7) | |||||
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Patient and family engagement | 15 (28.3) | 2 (9.1) | 12 (25.5) | 1 (8.3) | 30 (22.4) | |||||
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Preparation for personal care rather than clinical care | 4 (7.5) | 0 (0) | 1 (2.1) | 0 (0) | 5 (3.7) | |||||
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Response to patient | 1 (1.9) | 17 (77.3) | 4 (8.5) | 8 (66.7) | 30 (22.4) | |||||
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Variability of care services | 4 (7.5) | 0 (0) | 0 (0) | 0 (0) | 4 (3) | |||||
| Cost, finance, and resources | 33 (16.8) | 3 (3.2) | 44 (19.8) | 2 (5.3) | 82 (14.9) | ||||||
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Administrative burden | 3 (9.1) | 0 (0) | 3 (6.8) | 0 (0) | 6 (7.3) | |||||
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Cost issues | 5 (15.2) | 0 (0) | 10 (22.7) | 1 (50) | 16 (19.5) | |||||
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Cost options | 11 (33.3) | 1 (33.3) | 1 (2.3) | 0 (0) | 13 (15.9) | |||||
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Dedicated staff | 2 (6.1) | 0 (0) | 5 (11.4) | 0 (0) | 7 (8.5) | |||||
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Medicare Advantage or other programs | 10 (30.3) | 0 (0) | 14 (31.8) | 0 (0) | 24 (29.3) | |||||
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Need for resources | 1 (3) | 2 (66.7) | 1 (2.3) | 1 (50) | 5 (6.1) | |||||
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Turnover issues | 1 (3) | 0 (0) | 10 (22.7) | 0 (0) | 11 (13.4) | |||||
| Data, documentation, and outcomes | 38 (19.4) | 8 (8.5) | 36 (16.2) | 7 (18.4) | 89 (16.2) | ||||||
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Demonstration of value | 15 (39.5) | 0 (0) | 3 (8.3) | 0 (0) | 18 (20.2) | |||||
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Demonstration of value (patience) | 0 (0) | 0 (0) | 4 (11.1) | 0 (0) | 4 (4.5) | |||||
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Documenting patient routines and incidences | 1 (2.6) | 2 (25) | 1 (2.8) | 7 (100) | 11 (12.4) | |||||
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Need to document outcomes | 17 (44.7) | 0 (0) | 13 (36.1) | 0 (0) | 30 (33.7) | |||||
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Need to document outcomes (standardization) | 1 (2.6) | 0 (0) | 0 (0) | 0 (0) | 1 (1.1) | |||||
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Need to document outcomes, with some limitations | 1 (2.6) | 0 (0) | 0 (0) | 0 (0) | 1 (1.1) | |||||
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Sharing information and resources | 3 (7.9) | 6 (75) | 15 (41.7) | 0 (0) | 24 (27) | |||||
| Resources for caregivers | 15 (7.7) | 21 (22.3) | 31 (14.0) | 3 (7.9) | 70 (12.7) | ||||||
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Allocating caregiver services | 2 (13.3) | 0 (0) | 7 (22.6) | 0 (0) | 9 (12.9) | |||||
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Benefit of experience | 0 (0) | 6 (28.6) | 5 (16.1) | 0 (0) | 11 (15.7) | |||||
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Caregiver support and mentoring | 0 (0) | 0 (0) | 5 (16.1) | 0 (0) | 5 (7.1) | |||||
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Need for training and education | 13 (86.7) | 15 (71.4) | 14 (45.2) | 3 (100) | 45 (64.3) | |||||
| Technology | 57 (29.1) | 40 (42.6) | 64 (28.8) | 14 (36.8) | 175 (31.8) | ||||||
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Acceptance of technology | 6 (10.5) | 3 (7.5) | 7 (10.9) | 1 (7.1) | 17 (9.7) | |||||
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Acceptance of technology and barriers to use | 4 (7) | 2 (5) | 1 (1.6) | 3 (21.4) | 10 (5.7) | |||||
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Acceptance of technology, but not universal | 0 (0) | 0 (0) | 1 (1.6) | 0 (0) | 1 (0.6) | |||||
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Benefit of family contributing content | 4 (7) | 1 (2.5) | 3 (4.7) | 3 (21.4) | 11 (6.3) | |||||
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Benefit of personalized content | 7 (12.3) | 11 (27.5) | 11 (17.2) | 3 (21.4) | 32 (18.3) | |||||
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|
Benefit of technology | 19 (33.3) | 10 (25) | 20 (31.3) | 1 (7.1) | 50 (28.6) | |||||
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Benefits of technology, mostly but not always | 0 (0) | 1 (2.5) | 0 (0) | 0 (0) | 1 (0.6) | |||||
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Benefits of technology, with some limitations | 1 (1.8) | 0 (0) | 5 (7.8) | 0 (0) | 6 (3.4) | |||||
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Challenges of technology | 5 (8.8) | 9 (22.5) | 9 (14.1) | 1 (7.1) | 24 (13.7) | |||||
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Expanding personalization options | 2 (3.5) | 3 (7.5) | 1 (1.6) | 2 (14.3) | 8 (4.6) | |||||
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|
Expanding technology | 3 (3.5) | 0 (0) | 5 (7.8) | 0 (0) | 8 (4.6) | |||||
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Integrating technology into standard care | 6 (10.5) | 0 (0) | 1 (1.6) | 0 (0) | 7 (4) | |||||