Table 1.

Extent of service user involvement in study conceptualisation, design, data interpretation, and dissemination

Type of activity	Impact
Appointed to the study steering committee	Safeguarded service user involvement in decision making
Shaped study aims and helped decide on its methodology	Increased the likelihood that the study was grounded in, and relevant to, service users’ lives and helped identify lines of inquiry not previously considered
Co-developed user friendly documentation, helped select assessment instruments, and design the interview protocol	Ensured documentation was accessible and instruments and protocols used reflected service user priorities, experience, and preferences
Enabled the interpretation of findings from non-clinical/academic perspectives	Identified novel insights from the dataset
Contributed to knowledge transfer and exchange activities	Ensured findings were communicated in an effective way, beyond clinical and research communities, to service user and general populations