Table 1.
Descriptive patient data
| Variable | Percentage of sample (n = 12) |
|---|---|
| Current diagnosis (parental report)a | |
| CDD | 75 (n = 9) |
| PDDNOS & ASD | 17 (2) |
| ASD | 8 (1) |
| Current age | |
| 3–10 years | 33 (4) |
| 10–18 years | 50 (6) |
| 18 + years | 17 (2) |
| Gender | |
| Male | 92 (11) |
| Female | 8 (1) |
| Care situation | |
| Living at home full-time | 33 (4) |
| Living at home, with respite in a care home | 25 (3) |
| Living in care full-time | 42 (5) |
| Evident regression in child’s abilities? | |
| Yes | 100 (12) |
| No | 0 |
| Age of regression onsetb | |
| Before 2 years | 8 (1) |
| 2–4 years | 67 (8) |
| 4–7 years | 8 (1) |
| 7 + years | 8 (1) |
| Regression symptoms | |
| Loss/Decline of language skills | 100 (12) |
| Loss/Decline of social skills | 83 (10) (17% report this may already have been present) |
| Loss/Decline of motor skills | 50 (6) |
| Loss/Decline of toilet training abilities | 50 (6) |
| Hallucinations | 33 (4) |
| Fear/awareness ‘something was wrong’ | 33 (4) (an additional 8% report crying/sadness) |
| Developing repetitive behaviours | 83 (10) |
| Epilepsy (not included in questionnaire) | 25 (3) (an additional 17% with sub-clinical ‘overactivity’ or seizures) |
a100% of sample at some point registered with CDD according to NPR
b8% Unsure