Table 5.
Intra-personal changes of the presence of a personal last wish and themes of personal last wishes from the onset of specialist palliative care until follow-up (longitudinal analysis)
|
Onset of SPC compared to follow-up (entire sample: N = 130) |
|||||||||
|---|---|---|---|---|---|---|---|---|---|
| steadily reporteda | newly reportedb | no longer reportedc | steadily not reportedd | ||||||
| n | % | n | % | n | % | n | % | p | |
| Presence of a personal last wish (yes) | 53 | 46.5 | 17 | 14.9 | 22 | 19.3 | 22 | 19.3 | .522 |
| If yes, in the category of (N = 53) | |||||||||
| Travel | 13 | 24.5 | 9 | 17.0 | 7 | 13.2 | 24 | 45.3 | .804 |
| Activities | 6 | 11.3 | 4 | 7.5 | 5 | 9.4 | 38 | 71.7 | 1.000 |
| Regaining health | 5 | 9.4 | 7 | 13.2 | 8 | 15.1 | 33 | 62.3 | 1.000 |
| Quality of life | 2 | 3.8 | 11 | 10.8 | 3 | 5.7 | 37 | 69.8 | .057 |
| Being with family and friends | 2 | 3.8 | 7 | 13.2 | 6 | 11.3 | 38 | 71.7 | 1.000 |
| Dying comfortably | 0 | 0.0 | 0 | 0.0 | 1 | 1.9 | 52 | 98.1 | –-e |
| Turn back time | 0 | 0.0 | 0 | 0.0 | 1 | 1.9 | 52 | 98.1 | –-e |
| Taking care of final matters | 0 | 0.0 | 1 | 1.9 | 0 | 0.0 | 52 | 98.1 | –-e |
Abbreviations p probability of type I error (exact McNemar test)
a Reported at the onset of SPC (t0) and at follow-up (t1); b Not reported at t0 but at t1; c Reported at t0 but not at t1; d Neither reported at t0 nor at t1; e Significance not tested due to lacking variation in sample data