Table 1.
Clinical dimension | Item number | Item description |
---|---|---|
1 Experience of pre-diagnosis care | 5 | Beforehand, did you have all the information you needed about your test? |
7 | Were the results of the test explained in a way you could understand? | |
9 | How do you feel about the way you were told you had cancer? | |
11 | When you were told you had cancer, were you given written information about the type of cancer you had? | |
2 Experience of receiving diagnosis and treatment information | 13 | Were the possible side effects of treatment(s) explained to you in a way you could understand? |
14 | Were you offered practical advice and support in dealing with the side effects of your treatment(s)? | |
16 | Were you involved as much as you wanted to be in decisions about your care and treatment? | |
26 | After the operation, did a member of staff explain how it had gone in a way you could understand? | |
49 | Did the doctors or nurses give your family or someone close to you all the information they needed to help care for you at home? | |
3 Experience of clinical staff support | 18 | How easy or difficult has it been for you to contact your Clinical Nurse Specialist? |
19 | When you have had important questions to ask your Clinical Nurse Specialist, how often have you got answers you could understand? | |
20 | Did hospital staff give you information about support or self-help groups for people with cancer? | |
22 | Did hospital staff give you information about how to get financial help or any benefits you might be entitled to? | |
41 | While you were being treated as an outpatient or day case, did you find someone on the hospital staff to talk to about your worries and fears? | |
4 Experience of clinical staff support as an inpatient | 30 | If your family or someone else close to you wanted to talk to a doctor, were they able to? |
35 | During your hospital visit, did you find someone on the hospital staff to talk to about your worries and fears? | |
36 | Did the hospital staff do everything they could to help control your pain? |
Items numbered according to CPES wave 5. Overall experience of care pathway based on responses to all clinical dimensions