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. 2022 Mar 16;7(1):e35687. doi: 10.2196/35687

Table 5.

Exemplar satisfaction quotes from people with diabetes and their care partners.

Question Exemplar quotes from people with diabetes Exemplar quotes from care partners
Likes about RT-CGMa data sharing
  • “That if I am having a low blood sugar someone else is aware and can help if I need it”

  • “Made us both aware of my situation and allowed us to work together on my progress and challenges”

  • “He saved me by calling when I had a very low blood sugar”

  • “She sees how challenging it is to maintain good control”

  • “I liked being able to have instant access to her numbers”

  • “It was comforting to know where his blood sugars were”

  • “It is very helpful and allows us all as a family to suggest treatment decisions”

Dislikes about RT CGM data sharing
  • “I usually knew what was going on, was a little irritating to have him remind me”

  • “They over-reacted”

  • “Some inconsistencies between [meter] and CGM and variable times losing contact with sensor data”

  • “I got scared a few times when he had lows and maybe I worried about him more than when I didn’t know”

Recommendations for other people like you for RT-CGM with data sharing
  • “I felt freedom and constant knowledge of glucose. Do it! Do it! Freedom”

  • “Be patient and just know that your partner is looking out for you”

  • “Diabetes is a roller coaster experience, it will take time to learn how to deal with it!”

  • “Highly recommend the CGM and shared data, has helped the family dynamics (i.e., reducing anxiety and constant stress of asking ___ to check his blood sugars”

  • “My husband is exceptional with no temper. It might be hard for some people if they didn’t have the right kind of relationship”

  • “As long as there is already good communication and the [person with diabetes] is willing to take responsibility rather than making you their ‘blood sugar police,’ I think it can be great”

Recommended
intervention improvements
  • “I need to know more about adjusting alarm sounds for highs”

  • “A bit more training on the computer program that stores the results?”

  • “The clarity apps are helpful, and produce a big picture of the complications of the disease, but they do not help much when I want to know how many units of insulin I need to drop or increase the reading by ‘x’ units”

  • “Follow up every week”

  • “….Talk about the [CGM] data over time”

  • “Remember older people might forget certain things over time like” calibrating” CGM with [meter] blood glucose readings”

  • “Could have used additional written instructions on how to install a new transmitter to the phone”

aRT-CGM: real-time continuous glucose monitoring.