Table 2.

Key quotes from caregiver interviews, grouped by theme.

Theme and function			Key quotes
App setup and planning
	App log-in and caregiver team creation	“This is nice, select from contacts. Okay, search. That part’s really nice.” “I know what a central line is because I’m a surgeon, but I’m not sure other people would know that.”
	Emergency action planning	“Yeah. It just goes right to my contacts and pulled it through, so very easy. So, I added that.”
	Task list and planning list	“Actually, I would probably add to this grabbing her medications only because the last time we went to the ER, we forgot them. Oh, my goodness sakes. We’ve been doing this for how long, and then we forgot it.” “I really like that because when you’re in that moment, it’s hard to remember everything...Yeah, that’s cool.” “This is helpful because I feel like I always forget something...”
Seeking emergency care
	When you arrive	“Yeah, and we have utilized two emergency room departments,...and both of them have been disastrous. So, just as I’m reading this, I’m like, oh my gosh. If I had something like this, I could be like, look, this is what has to happen. I think it would be huge.” “The first time we went to [a local hospital], the doctor was looking at me like, what do you want me to do?...So, I guess that would have been helpful to be able to show that to him like this is what their plan, what they recommend.”
Medical management of care
	Logging symptoms	“I think it’s a very convenient, very easy, very helpful because we may not write down as much as what we should, and this would be very easy to just pull up and push the buttons and say okay, this is what’s going on.” “Yeah. I mean, I think it would be better with words under it...”
	Medications	“Right, but it’s cool though to have a listing of her medications. I don’t know what type of information...I think [it would be helpful to have] because I know we get the papers, clinic or an inpatient, but I know those hardcopies just get sort of lost in the shuffle.” “I would say having one app where you manage everything, including the regularly scheduled meds, which are really honestly extremely important. That’s the treatment.”
	Miscellaneous	To-do list: “Yeah, and medicines would be good on there. Right now, I do it on a board, but it would be easier to do it in my phone, so I had it when I got over to the hospital.”