TABLE 1.

Demographic and clinical information for 5371 individuals with myelomeningocele at entry into the registry

	n (%)
Ethnicity/race
Non-Hispanic white	3427 (64)
Hispanic or Latino	1170 (22)
Non-Hispanic black	420 (8)
Other (unknown or refused)	354 (7)
Female	2776 (52)
Insurance
Public only	2672 (50)
Any private	2335 (43)
Miscellaneous	364 (7)
Motor level
Thoracic	1065 (20)
High-lumbar	595 (11)
Mid-lumbar	1662 (31)
Low-lumbar	966 (18)
Sacral	1083 (20)
Hoffer status at first visit, n (%)
Community	2591 (48)
Household	511 (10)
Therapeutic	478 (9)
Nonambulatory	1791 (33)