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. 2022 Mar 18;6(3):e33584. doi: 10.2196/33584

Table 2.

Stage 2: learnings from patient-centered measurement (PCM) and portal implementation.

Learnings Patients Providers
Use of patient portal (not used during visits)
  • View educational and community resources and complete PROMsa and PREMsb

  • A way to overcome isolation and focus on self

  • Unable to use during times of severe depression or fatigue

  • Ways to provide information to the patient and impart “a feeling that care is nearby”

  • A lack of integration with EMRc

  • Resulted in use by a single nurse to manually transfer patient-generated data, which were rarely reviewed during a care visit

  • Lack of alerts to trigger action reduced portal usefulness

Value of educational resources
  • Knowledge is vital to overcoming illness

  • Provide credible information and avoid getting “lost in the abyss”

  • The initial educational materials provided would have been helpful earlier in their diagnosis and illness. Personalized material would be valuable

  • Appreciated the potential for educational resources to be tailored to the patient’s stage and needs

  • “Not able to sustain ongoing educational material development or deployment”

Use of PCMs
  • Completing PROMs was extremely “validating”

  • Sense of being heard and capturing more of the relevant information about their mental health

  • Tracking and trending scores using a portal “painted a picture of where I am”

  • Frustration that their providers were not asking about or reviewing PROMs during care visits

  • Unclear who was to bring up the PROM

Did not use within portal because of the following reasons:
  • Lack of integration of portal with EMR (only total score of PROMs were manually entered into the EMR)

  • Lack of alerts for changes in questionnaire scores that should trigger action

  • Belief that the PCM did not add to the existing relationship

Optimizing completion and use of PROMs
  • Timely reminders for PROM completion

  • PROMs needed that address function to aid “what created my responses” as part of the interpretation of a measure

  • Timely customizable reminders for PROM completion

  • Interoperability of systems

  • Additional training on use of PROMs

aPROM: patient-reported outcome measure.

bPREM: patient-reported experience measure.

cEMR: electronic medical record.