Table 3.

The interview guide (translated into English).

General questions - Have you been informed about the purpose of the questionnaire? - Have you considered what might be the purpose of applying the questionnaire? - Do you think it might benefit you somehow to complete the questionnaire? - Do you think it might benefit others that you complete the questionnaire? - Did the consultation meet your expectations? How come? The consultation The use of PRO-data: - What did you discuss during the consultation? - Were your answers to the questionnaire presented to you during the consultation? How was this done? - Did it affect the conversation with the healthcare professional that your answers from the questionnaire was used? In what way? - Did you discuss any subjects that normally are omitted? Which? - In comparison to former consultations, did the questionnaire make this consultation different somehow? What was different? Presentation of the PRO-data: - Was the data from the questionnaire shown to you during the conversation? How was this done? Was it comprehensible? - If No: Do you think that data should be presented on the computer and be used during the consultation? - If Yes: What are your thoughts on this, that data is presented on the computer and used during the consultation? Did it affect your conversation? How? Participation in the conversation: - Did you feel that the healthcare professional gave you opportunities to participate in the conversation? - Who controlled the conversation? Would you have liked to be more in control or was it appropriate? - Was it a conversation between equal partners or how would you describe your positions during the conversations? - Did the healthcare professional use the data from the questionnaires when making treatment decisions? How exactly? - Did the information from the questionnaire increase your influence when making treatment decisions? Recognition during the consultation: - Did you feel heard? Did the healthcare professional listen to you? What gave you this impression? Did the questionnaire have any influence on this? - Did you feel seen? Was the healthcare professional genuinely interested in your situation? How did you sense this? Did the questionnaire have any influence on this? - Were the main subjects in the conversation also those that mattered the most to you or were the subjects decided by the healthcare professional? - Did you have sufficient time to discuss all the issues that the questionnaire highlighted as being important? New knowledge - based on the conversation: - Did the use of the questionnaire during consultation enhance your current knowledge or provide you with new knowledge that might help you handle your diabetes in the future? What type of knowledge? Summative: - Do you think the information from the questionnaire was used appropriately during the onversation or should something be done differently?

Completion of the questionnaire - Was your diabetes situation the same when answering the questionnaire and when participating in the consultation? The citizen’ s general experience of the questionnaire: - Was the questionnaire meaningful to you? Did it make sense to complete such a questionnaire? Did it make sense as you completed the questionnaire? - How did you experience the completion of the questionnaire? Was it burdensome? - How was the length of the questionnaire? - How do you feel about completing similar questionnaires every time you are going to a consultation at the Centre for Diabetes? eHealth literacy/health literacy: - Did you feel capable of answering the questions in the questionnaire? How were the language and wording? - Did you understand the questions? Was any of them ambiguous? Can you give an example? New knowledge: - Did the questionnaire provide an overview of the areas concerning your diabetes that are most important to you? - Did the completion of the questionnaire provide you with any new knowledge or confirmed some of the knowledge you already hold? What type of knowledge? - Were any subjects that you believe are important for others when trying to understand how it is going with your diabetes missing? Are you able to use this knowledge?: - Has the questionnaire affected how you manage your diabetes? - Has the questionnaire enhanced your ability to follow healthcare professionals’ information and guidelines? - Can you make use of the questionnaire as part of your everyday life? Do you for example feel more capable when handling your diabetes? - What if data was accessible and you were able to follow the progression of your disease, would you make use of that? Location and mediation: - Where did you answer the questionnaire? - If completed at CFD: How was it to complete the questionnaire here at the Centre for Diabetes? - How do you prefer to complete the questionnaire? Do you prefer a certain location? Why is that? - Do you prefer electronic or paper-based questionnaires? Why is that? - Do you have access to the internet and IT equipment? Did it work satisfactorily during the consultation?