Table 3.

Frequency of Symptoms Reported by Adolescents with ADPKD

Symptom	No. (%) of All Participants (N = 33)	No. (%) of Females (n = 14)	No. (%) of Males (n = 19)
No symptoms	5 (15.2%)	1 (7.1%)	4 (21.1%)
Hypertension	11 (33.3%)	5 (35.7%)	6 (31.6%)
Hematuria	4 (12.1%)	1 (7.1%)	3 (15.8%)
Abdomen shape and size	3 (9.1%)	2 (14.3%)	1 (5.3%)
Bulge or “weirdly” shaped	2 (6.1%)	1 (7.1%)	1 (5.3%)
Can feel kidneys	1 (3.0%)	1 (7.1%)	0
Can’t bend over	1 (3.0%)	1 (7.1%)	0
Pain	21 (63.6%)	11 (78.6%)	10 (52.6%)
Ache or hurt or pain in back	9 (27.3%)	6 (42.9%)	3 (15.8%)
Kidney(s) hurt or pain	6 (18.2%)	3 (21.4%)	3 (15.8%)
Uncomfortable or discomfort	6 (18.2%)	3 (21.4%)	3 (15.8%)
Intense pain (burst or infection)	5 (15.2%)	3 (21.4%)	2 (10.5%)
Pain in front, stomach	4 (12.1%)	2 (14.3%)	2 (10.5%)
Cramp or stitch (pain)	3 (9.1%)	1 (7.1%)	2 (10.5%)
Dull pain	3 (9.1%)	1 (7.1%)	2 (10.5%)
Headache	3 (9.1%)	1 (7.1%)	2 (10.5%)
Kidneys hurt during or after urination	3 (9.1%)	2 (14.3%)	1 (5.3%)
Flank pain or pain in the sides	2 (6.1%)	2 (14.3%)	0
“Pain” (not otherwise identified)	2 (6.1%)	1 (7.1%)	1 (5.3%)
“Pressure”	2 (6.1%)	1 (7.1%)	1 (5.3%)
“Sharp” or “stabbing” pain	2 (6.1%)	1 (7.1%)	1 (5.3%)
Sudden pain	2 (6.1%)	1 (7.1%)	1 (5.3%)
“Gnawing, episodic”	1 (3.0%)	1 (7.1%)	0
“Heavy” kidneys	1 (3.0%)	0	1 (5.3%)
Pulsating pain	1 (3.0%)	0	1 (5.3%)
“Stinging” pain	1 (3.0%)	1 (7.1%)	0
Throbbing pain	1 (3.0%)	1 (7.1%)	0
Fullness	10 (30.3%)	5 (35.7%)	5 (26.3%)
Stomach felt full	6 (18.2%)	3 (21.4%)	3 (15.8%)
Blocked sensation	1 (3.0%)	1 (7.1%)	0
Not hungry	1 (3.0%)	1 (7.1%)	0
Unclear terminology	2 (6.1%)	0	2 (10.5%)
Urinary frequency and urgency	17 (51.5%)	8 (57.1%)	9 (47.4%)
Urinary urgency	10 (30.3%)	4 (28.6%)	6 (31.6%)
Urinary frequency	6 (18.2%)	3 (21.4%)	3 (15.8%)
Because I drink more water	6 (18.2%)	4 (28.6%)	2 (10.5%)
Urinate at night	3 (9.1%)	1 (7.1%)	2 (10.5%)