Table 5.

Frequency of Disease Impacts Reported by Adolescents with ADPKD

Impactsa	No. (%) of All Participants (N = 33)	No. (%) of Females (n = 14)	No. (%) of Males (n = 19)
No impacts	7 (21.2%)	3 (21.4%)	4 (21.1%)
Tiredness
“Tired” or “fatigued”	2 (6.1%)	1 (7.1%)	1 (5.3%)
No strength	1 (3.0%)	1 (7.1%)	0
No energy (to do things)	1 (3.0%)	1 (7.1%)	0
Exhausted at the end of the day	1 (3.0%)	0	1 (5.3%)
Impacts on activities
Can’t do sports or avoid sports	10 (30.3%)	6 (42.9%)	4 (21.1%)
Missed, skipped a class, or left school	6 (18.2%)	1 (7.1%)	5 (26.3%)
Felt uncomfortable at school	2 (6.1%)	1 (7.1%)	1 (5.3%)
Delay doing things	2 (6.1%)	0	2 (10.5%)
Causes difficulties at work	2 (6.1%)	1 (7.1%)	1 (5.3%)
Sometimes do not listen to doctor	1 (3.0%)	1 (7.1%)	0
Dietary impacts
Have to watch salt intake or drink more water	7 (21.2%)	1 (7.1%)	6 (31.6%)
Social impacts
Cannot do something with friends	6 (18.2%)	3 (21.4%)	3 (15.8%)
Do not talk with friends about it	3 (9.1%)	2 (14.3%)	1 (5.3%)
Compare self to others	2 (6.1%)	1 (7.1%)	1 (5.3%)
Trust friends (not to gossip)	1 (3.0%)	0	1 (5.3%)
Emotional impacts
Worried (about disease and future)	6 (18.2%)	2 (14.3%)	4 (21.1%)
Accept disease (as is)	5 (15.2%)	3 (21.4%)	2 (10.5%)
Feel sad	4 (12.1%)	1 (7.1%)	3 (15.8%)
Do not want to think about PKD	4 (12.1%)	3 (21.4%)	1 (5.3%)
Frustrated	3 (9.1%)	1 (7.1%)	2 (10.5%)
Annoyed by PKD symptoms	1 (3.0%)	0	1 (5.3%)
Nervous	1 (3.0%)	1 (7.1%)	0
Life-plan impacts
Having children	7 (21.2%)	3 (21.4%)	4 (21.1%)
Changed career path	1 (3.0%)	1 (7.1%)	0
Difficult to get a job	1 (3.0%)	0	1 (5.3%)

Abbreviation: PKD, polycystic kidney disease.

^aStudy participants’ wording or phrasing has been retained when listing some impacts.