TABLE 1.
Baseline demographic and descriptive characteristics of caregivers and patients
| Caregiver characteristics (n = 129) | Mean (SD) | Range |
|---|---|---|
| Age (years) | 48.6 (11.8) | 20 to 76 |
| Median | Range | |
| Months of Caregiving (n = 121) | 18.0 | 0.3 to 276 |
| n | % | |
| Sex | ||
| Female | 87 | 67.4 |
| Race and ethnicity (n = 128) | ||
| White and non-Hispanic | 91 | 71.1 |
| Non-White and Non-Hispanic | 18 | 14.1 |
| Hispanic/Latino | 19 | 14.8 |
| Education level | ||
| High School Graduate or below | 7 | 5.4 |
| Some College or Associate's Degree | 43 | 33.4 |
| Bachelor's Degree | 35 | 27.1 |
| Postgraduate Degree and above | 44 | 34.1 |
| Annual Household Income | ||
| <$50 000 | 35 | 27.6 |
| $50 000 to $89 000 | 32 | 25.2 |
| >$89 000 | 60 | 47.2 |
| Employment status | ||
| Full time | 74 | 57.4 |
| Part time | 21 | 16.3 |
| Not currently employed | 34 | 26.4 |
| Change in employment status | ||
| Yes | 65 | 50.4 |
| Left employment | 16 | 12.4 |
| Work fewer hours | 25 | 19.4 |
| Work more hours | 3 | 2.3 |
| Leave of absence | 21 | 16.3 |
| Marital status | ||
| Married | 107 | 83.6 |
| Relation to patient | ||
| Spouse/partner | 64 | 49.6 |
| Parent | 45 | 34.9 |
| Othera | 20 | 15.5 |
| Caregiver role | ||
| Sole caregiver | 59 | 45.7 |
| Part of a team | 70 | 54.3 |
| Double-duty Caregiverb | ||
| Yes | 43 | 33.6 |
| Does the caregiver live with the patient | ||
| Yes | 100 | 78.1 |
| Resides locallyc | 37 | 28.7 |
| Patient Characteristics (n = 111) | Mean (SD) | Range |
| Patient age (years) | 41.6 (18.6) | 4 to 76 |
| Patient Characteristics (n = 111) | n | % |
| Patient sex | ||
| Male | 61 | 55.0 |
| Patient type | ||
| Adult | 84 | 75.7 |
| Pediatric | 27 | 24.3 |
| Patient cancer typed | ||
| Carcinoma | 53 | 47.8 |
| Leukemia | 25 | 22.5 |
| Sarcoma | 23 | 20.7 |
| Lymphoma | 9 | 8.1 |
| Myeloma | 1 | 0.9 |
| Cancer treatment type | ||
| Biotherapy/immunotherapy | 69 | 62.2 |
| Allogeneic HSCTe | 11 | 9.9 |
| Chemotherapy | 10 | 9.0 |
| Surgery | 10 | 9.0 |
| Otherf | 11 | 9.9 |
| Hospital status | ||
| Inpatient | 92 | 83.6 |
Other: child (n = 10), sister (n = 5), other family (n = 3), and friend (n = 2).
Double-duty caregivers are caregivers who provide care to one or more people other than the cancer patient.
Resides locally = within 100 miles of NIH.
Type: Carcinoma: prostate, melanoma, anal, breast, lung, colon, liver, cervical, ovarian, adrenal cortical, pancreatic, kidney, thymus, thyroid and peritoneal cancer; Leukemia: chronic myelogenous leukemia, acute lymphocytic leukemia, acute myelogenous leukemia, and chronic lymphocytic leukemia; Sarcoma: brain, gastrointestinal stromal tumor and desmoid tumors; Lymphoma: Hodgkin's and non-Hodgkin's lymphoma; Myeloma: multiple myeloma.
HSCT = hematopoietic stem-cell transplantation.
Other treatments: Radiation (n = 3) and combination therapy (n = 8).